<<Disclaimer: Verify this information before applying it to your situation.>>

The survey question is included below but not the original article that
prompted it so as not to exceed the message length limit.  Thank you to all
who responded.  There are 46 data points altogether, including children and
siblings that were included in the responses.

 

I should have asked if the diagnosis of celiac disease came before or after
the tonsillectomy.  Some of you were astute enough to include that
information.  In some ways it's moot: 2) some people suspect they were
celiac long before diagnosis and 2) the results seem to be all over the map.
This is not a scientific study but 46 is a formidable sample size. I'll
write to the author and let him know the results.

 

Most respondents (40) were diagnosed celiacs

            22 had their tonsils out

                        7 had their tonsils out (timing not specified)

                        10 had their tonsils out before diagnosis

                        5 had their tonsils out after diagnosis

            18 still have their tonsils

Only 6 classified themselves as gluten sensitive or intolerant (not
diagnosed celiac)

            4 had their tonsils out

                        2 unspecified date

                        2 before developing intolerance

            2 still have their tonsils.

 

There weren't enough of us undiagnosed celiacs to draw any conclusions at
all!.

 

Among the celiacs, the 5 who had their tonsils out after diagnosis could be
combined with those who still have their tonsils for a total of 23 as far as
the premise of the article goes- that removing tonsils predisposed to celiac
disease- pretty well shooting down the hypothesis.   Besides, there has been
a move away from tonsillectomies even while the incidence of celiac, or at
least its diagnosis, is increasing.

 

In all fairness to the author, he makes a good argument in favor of keeping
tonsils if only to avoid unnecessary surgery if other means, such as diet
and vitamin supplements, can keep their swelling down.  Could the real
question be the correlation of tonsillitis (and not the surgery) to celiac
disease and perhaps non-celiac gluten intolerance?

 

Some people mentioned other autoimmune conditions as well, and breastfeeding
as a factor, but I just kept this survey analysis as simple as I could.

 

Thanks again for participating!  

 

Mary in upstate NY

 

 

-----Original Message-----
From: Celiac/Coeliac Wheat/Gluten-Free List
[mailto:[log in to unmask]] On Behalf Of Mary Thorpe
Sent: Tuesday, March 31, 2015 5:12 PM
To: [log in to unmask]
Subject: Is this childhood surgery causing viral cancers and autoimmune
diseases?

 

---------------------- Information from the mail header
-----------------------

Sender:       Celiac/Coeliac Wheat/Gluten-Free List
<[log in to unmask]>

Poster:       Mary Thorpe <[log in to unmask]>

Subject:      Is this childhood surgery causing viral cancers and autoimmune

              diseases?

----------------------------------------------------------------------------
---

 

<<Disclaimer: Verify this information before applying it to your
situation.>>

 

The article below was in my inbox today.  I had never thought of the

implications of having tonsils removed.  Mine came out and I developed

gluten intolerance.  How about you?  If you respond, please let me know if

you are diagnosed with celiac or not and whether you had your tonisils

removed or not for the sake of a summary. 

 

Tonsils out_______yes_________no

 

Diagnosed celiac ______yes _______no, but gluten intolerant

 

Mary in upstate NY

 


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