Nice to hear about that, Pat.  I've been involved with them as a patient 
advocate, and of course, I can't make any recommendations on Hetlioz which 
is the tradename of Tasimelteon, but I hope it is as effective for me as it 
has been for you.  I was  not in the lab study, so I'll be trying to get 
some in the Spring when it hits the market.

Steve, K8SP
----- Original Message ----- 
From: "John Miller" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, February 02, 2014 12:29 PM
Subject: Re: It's legit


> That explains why my sleep schedule was such a mess growing up I guess
> though I find now that i have a little one keeping me active, and really
> once I got out on my own, it's not a problem as much.
> ----- Original Message ----- 
> From: "Pat Byrne" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Sunday, February 02, 2014 11:58 AM
> Subject: It's legit
>
>
>> Here it is; the condition has been well described by others but
>> apparently we totals often have body clocks that run wrong because of
>> no light perception.  I have been in the test study for the new drug
>> for nearly three years now and have been taking the drug for almost
>> two of them.  I may have been on the placebo at first - I haven't
>> been told and I don't believe that the testing organization knew,
>> either.  There were a number of test locations around the U S and in
>> Germany.  The test was sponsored by Vanda Pharmaceuticals and the
>> drug received FDA approval last week.  The drug is:
>> Tasimelteon and is a 20 mg. capsule that you take 1 hour before
>> bedtime.  It is not a "sleeping pill" so there is no effect in the
>> morning.  I believe that the medication has improved my sleep/wake
>> pattern.  Not a miracle cure but helpful.  My body clock was set at
>> 26 hours or so, so as the cycle progressed I would get really sleepy
>> at odd times of the day and it was tough to be alert and on top of
>> things.  That is definitely better and I probably sleep better at
>> night, although I don't always sleep through until morning but I
>> never have.  Not too big a problem until they wrecked overnight A M 
>> radio!
>> That's my story and I'm stickin' to it!  This is to be a prescription
>> drug and of course I have no idea about the pricing.  The ethicacy
>> study will now end - I have perhaps 100 capsules left and will see
>> what happens to me next week.  It has been an interesting study and
>> hopefully others will benefit from it.
>> Thanks for reading.
>> Pat Byrne, K9JAU