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Subject:
From:
John Miller <[log in to unmask]>
Reply To:
For blind ham radio operators <[log in to unmask]>
Date:
Sun, 2 Feb 2014 12:29:11 -0500
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That explains why my sleep schedule was such a mess growing up I guess 
though I find now that i have a little one keeping me active, and really 
once I got out on my own, it's not a problem as much.
----- Original Message ----- 
From: "Pat Byrne" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, February 02, 2014 11:58 AM
Subject: It's legit


> Here it is; the condition has been well described by others but
> apparently we totals often have body clocks that run wrong because of
> no light perception.  I have been in the test study for the new drug
> for nearly three years now and have been taking the drug for almost
> two of them.  I may have been on the placebo at first - I haven't
> been told and I don't believe that the testing organization knew,
> either.  There were a number of test locations around the U S and in
> Germany.  The test was sponsored by Vanda Pharmaceuticals and the
> drug received FDA approval last week.  The drug is:
> Tasimelteon and is a 20 mg. capsule that you take 1 hour before
> bedtime.  It is not a "sleeping pill" so there is no effect in the
> morning.  I believe that the medication has improved my sleep/wake
> pattern.  Not a miracle cure but helpful.  My body clock was set at
> 26 hours or so, so as the cycle progressed I would get really sleepy
> at odd times of the day and it was tough to be alert and on top of
> things.  That is definitely better and I probably sleep better at
> night, although I don't always sleep through until morning but I
> never have.  Not too big a problem until they wrecked overnight A M radio!
> That's my story and I'm stickin' to it!  This is to be a prescription
> drug and of course I have no idea about the pricing.  The ethicacy
> study will now end - I have perhaps 100 capsules left and will see
> what happens to me next week.  It has been an interesting study and
> hopefully others will benefit from it.
> Thanks for reading.
> Pat Byrne, K9JAU 

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