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Date: | Sun, 2 Feb 2014 10:58:39 -0600 |
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Here it is; the condition has been well described by others but
apparently we totals often have body clocks that run wrong because of
no light perception. I have been in the test study for the new drug
for nearly three years now and have been taking the drug for almost
two of them. I may have been on the placebo at first - I haven't
been told and I don't believe that the testing organization knew,
either. There were a number of test locations around the U S and in
Germany. The test was sponsored by Vanda Pharmaceuticals and the
drug received FDA approval last week. The drug is:
Tasimelteon and is a 20 mg. capsule that you take 1 hour before
bedtime. It is not a "sleeping pill" so there is no effect in the
morning. I believe that the medication has improved my sleep/wake
pattern. Not a miracle cure but helpful. My body clock was set at
26 hours or so, so as the cycle progressed I would get really sleepy
at odd times of the day and it was tough to be alert and on top of
things. That is definitely better and I probably sleep better at
night, although I don't always sleep through until morning but I
never have. Not too big a problem until they wrecked overnight A M radio!
That's my story and I'm stickin' to it! This is to be a prescription
drug and of course I have no idea about the pricing. The ethicacy
study will now end - I have perhaps 100 capsules left and will see
what happens to me next week. It has been an interesting study and
hopefully others will benefit from it.
Thanks for reading.
Pat Byrne, K9JAU
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