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Subject:
From:
Pat Byrne <[log in to unmask]>
Reply To:
For blind ham radio operators <[log in to unmask]>
Date:
Sun, 2 Feb 2014 10:58:39 -0600
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Here it is; the condition has been well described by others but 
apparently we totals often have body clocks that run wrong because of 
no light perception.  I have been in the test study for the new drug 
for nearly three years now and have been taking the drug for almost 
two of them.  I may have been on the placebo at first - I haven't 
been told and I don't believe that the testing organization knew, 
either.  There were a number of test locations around the U S and in 
Germany.  The test was sponsored by Vanda Pharmaceuticals and the 
drug received FDA approval last week.  The drug is:
Tasimelteon and is a 20 mg. capsule that you take 1 hour before 
bedtime.  It is not a "sleeping pill" so there is no effect in the 
morning.  I believe that the medication has improved my sleep/wake 
pattern.  Not a miracle cure but helpful.  My body clock was set at 
26 hours or so, so as the cycle progressed I would get really sleepy 
at odd times of the day and it was tough to be alert and on top of 
things.  That is definitely better and I probably sleep better at 
night, although I don't always sleep through until morning but I 
never have.  Not too big a problem until they wrecked overnight A M radio!
That's my story and I'm stickin' to it!  This is to be a prescription 
drug and of course I have no idea about the pricing.  The ethicacy 
study will now end - I have perhaps 100 capsules left and will see 
what happens to me next week.  It has been an interesting study and 
hopefully others will benefit from it.
Thanks for reading.
Pat Byrne, K9JAU 

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