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From: NIH news releases and news items [mailto:[log in to unmask]] On
Behalf Of NIH OLIB (NIH/OD)
Sent: Tuesday, September 15, 2009 10:21
To: [log in to unmask]
Subject: NEW WEB SITE PROMOTES INTEROPERABLE NEWBORN SCREENING DATA
U.S. Department of Health and Human Services
NATIONAL INSTITUTES OF HEALTH NIH News
National Library of Medicine (NLM) <http://www.nlm.nih.gov/>
For Immediate Release: Tuesday, September 15, 2009
CONTACT: Kathy Craved, 301-496-6308, <e-mail:
[log in to unmask]>
NEW WEB SITE PROMOTES INTEROPERABLE NEWBORN SCREENING DATA
Standardization Will Support Quality Health Care for Children
The National Library of Medicine (NLM) today launched the Newborn Screening
Coding and Terminology Guide (http://newbornscreeningcodes.nlm.nih.gov), an
important step toward efficient electronic exchange of standard newborn
screening data. The new Web site was created in collaboration with the
Office of the National Coordinator for Health Information Technology, the
Health Resources and Services Administration, and the Centers for Disease
Control and Prevention, all components of the U.S. Department of Health and
Human Services, as well as a number of professional organizations, to enable
more effective use of newborn screening test results in assessing child
health and improving lifelong health care.
Newborn screening is an important part of public health, but use of test
results is complicated by wide variations among states in the ways tests are
conducted and results recorded - and by inefficient, paper-based
communications. The current situation can delay rapid attention to a child's
health problems, and it creates frustration and extra work for parents,
health care providers, and public health authorities. The new Web site is a
translator, to help deal with current complexity and to promote more
efficient electronic exchange of newborn screening information in the
future.
The Web site is designed to help states move toward the use of common
terminology and coding standards, a key step in enabling electronic exchange
of laboratory test information as well as readying newborn screening
information for inclusion in electronic health records (EHRs). The site
covers more than 100 conditions and lists the terminologies and codes used
for each. It also identifies the tests that may be used in screening for
each condition. For all the conditions and tests included, the preferred
standard terminology and codes are indicated. Users of the Web site can view
the information interactively or download electronic datasets of standard
names and identifiers for use in their systems.
"The Web site can also help researchers untangle the confusion of terms and
tests that exist today," said Dr. Clem McDonald, director of NLM's Lister
Hill National Center for Biomedical Communications. "But beyond research,
the most important goal for the new Web site is to help bring about
efficient electronic exchange of newborn screening information. The big gain
for patients and providers will come when we can include this information in
a child's permanent EHR."
The goal of the Newborn Screening Codes and Terminology Guide is to provide
a standard framework for reporting the results of newborn screening tests
whose contents can be accurately interpreted by recipient electronic systems
for use in care, follow-up and analysis. This standard framework will also
enable the use and comparison of data from different laboratories.
"For decades, the NLM has been a trailblazer in conducting and supporting
research in clinical informatics and electronic medical records," said NLM
Director Dr. Donald A.B. Lindberg. "Harmonizing standard coding, terminology
and electronic messaging methods in newborn screening will support quality
health care for children. Moreover, public health agencies will be better
equipped to observe and compare nationwide trends from newborn screening
test results, which will also support efforts of the biomedical research
community at NIH and elsewhere to improve newborn screening methods and
evaluation."
The National Library of Medicine is the world's largest library of the
health sciences. It is located on the NIH campus in Bethesda, Maryland. For
more information, visit the Web site at <http://www.nlm.nih.gov>.
The National Institutes of Health (NIH) -- The Nation's Medical Research
Agency -- includes 27 Institutes and Centers and is a component of the U.S.
Department of Health and Human Services. It is the primary federal agency
for conducting and supporting basic, clinical and translational medical
research, and it investigates the causes, treatments, and cures for both
common and rare diseases. For more information about NIH and its programs,
visit <www.nih.gov>.
##
This NIH News Release is available online at:
<http://www.nih.gov/news/health/sep2009/nlm-15.htm>.
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