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Date: | Sat, 21 Mar 2009 18:06:22 -0600 |
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Hello Allan:
Welcome to Cerebral Palsy! (I am trying to be serious .) My name is
Kathy Jo Pink . I was born with Cerebral Palsy. please feel free to
e-mail me off-list. I know what you must be going thru, Allen.
On 3/20/09, Allan Olive <[log in to unmask]> wrote:
> Hello All,
>
> I just signed up because I am looking for some help and I am having the
> hardest time finding what I need.
>
> I live in Columbia County Georgia and I have a 12 year old son with moderate
> CP. He has impaired speech and motor skills. He is in a wheelchair but can
> crawl. He can speak basic words with effort. He is toilet trained.
>
> To get right to it, I know that the divorce rate is high for families with children
> of disabilities. My wife and I divorced when my son was around 6 or 7. I have
> split custody so I have him 15 days out of the month. I am remarried, and
> that is where my problem is.
>
> My wife loves my son Daniel. But lately she is growing more and more
> annoyed and aggravated with him. It shows in how she talk to him and treats
> him. She is almost always angry when he is over. She has not always been
> this way with him, but it is getting worse and worse. You can almost cut the
> tension in the air when it is his time to be there.
>
> He tends to slump in his chair and hang his head to one side and to keep one
> of his hands clenched in a fist. If you look at him and tell him to sit up he
> will . He will self correct all of those things. He will sit there with his mouth
> open and watch tv or play and he tends to drool if he forgets to swallow. If
> you tell him to close his mouth and swallow he will with no problems. But after
> a few minutes he reverts back and may start to drool again.
>
> This is a huge issue for my wife. She does not understand why he has to
> constantly be reminded. If you look at him he will immediately close his mouth
> and swallow because he knows he should be doing that. But for some reason
> it really upsets my wife that he constantly has to be reminded and does not
> do it on his own. She thinks he knows he should and just chooses not too. I
> disagree. I don't like to see it either, but when I do, I try to lovingly remind
> him to do it. She says I am babying him. Am I? I don't know. I expect him
> to do it, but I don't get angry with him if he fails to.
>
> What should I do here? I am at a total loss. This has really become a
> problem between my wife and I. Is there a medical explanation as to why he
> constantly does that? Can he not be expected to remember to do those
> things on his own?
>
> Are their support groups for families that struggle with these issues? Is
> counseling available from people who have been there and understand? Are
> their on-line resources available that may help me?
>
> Thanks in advance for any response.
>
> -----------------------
>
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>
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>
--
Kathy Jo Pink
e-Mail Addresses: [log in to unmask], [log in to unmask],
[log in to unmask], and [log in to unmask]
Pogo Usual ScreenName: PerkPinkPerky
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