Thanks Kathy! I am excited to find a real group, ha, ha.  I have been looking 
for awhile and have been very frustrated by the number of attorney firms that 
pose as CP support groups.  Let me introduce myself to everyone.  My name is 
Laura and I am a mom to 4 wonderful kids.  My youngest son, Seth (14 months old 
now) was born 16 weeks early at a whole whopping 1 lb 7 oz.  Due to his extreme 
prematurity he had several medical problems at birth including Intraventricular 
hemorrhage (brain bleeds) grade 3 and grade 4 with resulting hydrocephalus.  
Three weeks ago he was diagnosed with CP.  He has low muscle tone in his neck, 
upper torso and lower extremeties with spasms below the knees, although no 
contractures.   While I knew from the time he was born that getting a diagnosis 
of CP was a very real possibility, having it actually said has made me an 
emotional train wreck.  Adding to that, just trying to take all the new 
information in, acquiring equipment, starting new therapies is it's own 
challenge.  I got divorced while my son was still in the NICU so there's nobody 
for me to talk to about worries and concerns.  It's even more frustrating for me 
at times because I've been a nurse for several years now, but have no experience 
in this area.  There's so much information, some very conflicting, to sort 
through.  


Wow, that sounds like I'm ranting doesn't it?!  I am excited to get to know 
everyone, and I hope nobody minds me picking your brains for information.  And 
maybe letting me vent once in awhile.   I promise not to make it a habit, lol.  
It really is kind of a relief just knowing there's others out there that are 
affected by the same thing, in some way, and joining together to support one 
another.  


I look forward to talking with you all more.

Laura



      

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