Welcome Laura,
I am "mag" online, and I'm a 54 year old with athetoid quad cp, in calif.
I can't imagine what it's like to have that tiny an infant, with the issues he
has.
It must certainly be overwhelming. I'm sorry his father is no longer there for
you or your children. Those of us who have been through the "fire" can tell you
what worked or didn't work for us, and you may get ideas from us, but each of us
has a different degree of brain damage.
I started out with very tight limbs and my head would go crashing backwards, i
didn't speak until i was 2, said my first sentence at 3, first stood unassisted
at 5, walked unassisted by 6 or 7.......... my parents refused to let me say the
words "I can't" and they were tigers about getting me the help I needed.
Thanks,
Tamar
~~~~~~~~
When the power of love overcomes the love of power,
the world will come to know peace.
Check out my new blog!
http://disabilityrightspetspoetryart.blogspot.com/
[log in to unmask]
http://www.zazzle.com/TamarMag*
________________________________
From: Kendall D. Corbett <[log in to unmask]>
To: [log in to unmask]
Sent: Mon, September 13, 2010 12:11:45 PM
Subject:
Laura,
Welcome to the group! I'm Kendall, 49, with CP and also hydrocephalus. I
was born in 1960 when shunting for hydrocephalus was still in it's early
stages. My wife also has CP. The neurosurgeon who placed my first shunt
told my parents I'd probably have CP, and he was right. My CP was fairly
mild, and I wasn't "officially" diagnosed until I was almost 3. Since I
wasn't walking yet, it was a fairly easy diagnosis. I had neck dystonia and
the official CP diagnosis was spastic diplegic, as I have bilateral tone and
spasticity in my legs. I went through school in normal or AP classes, and
graduated with a degree in political science from the University of Wyoming,
where I now work. There's more to my story, but let's hear more of yours
and Seth's...
On Mon, Sep 13, 2010 at 10:13 AM, Laura Mcintyre <[log in to unmask]>wrote:
> Thanks Kathy! I am excited to find a real group, ha, ha. I have been
> looking
> for awhile and have been very frustrated by the number of attorney firms
> that
> pose as CP support groups. Let me introduce myself to everyone. My name
> is
> Laura and I am a mom to 4 wonderful kids. My youngest son, Seth (14 months
> old
> now) was born 16 weeks early at a whole whopping 1 lb 7 oz. Due to his
> extreme
> prematurity he had several medical problems at birth including
> Intraventricular
> hemorrhage (brain bleeds) grade 3 and grade 4 with resulting
> hydrocephalus.
> Three weeks ago he was diagnosed with CP. He has low muscle tone in his
> neck,
> upper torso and lower extremeties with spasms below the knees, although no
> contractures. While I knew from the time he was born that getting a
> diagnosis
> of CP was a very real possibility, having it actually said has made me an
> emotional train wreck. Adding to that, just trying to take all the new
> information in, acquiring equipment, starting new therapies is it's own
> challenge. I got divorced while my son was still in the NICU so there's
> nobody
> for me to talk to about worries and concerns. It's even more frustrating
> for me
> at times because I've been a nurse for several years now, but have no
> experience
> in this area. There's so much information, some very conflicting, to sort
> through.
>
>
> Wow, that sounds like I'm ranting doesn't it?! I am excited to get to know
> everyone, and I hope nobody minds me picking your brains for information.
> And
> maybe letting me vent once in awhile. I promise not to make it a habit,
> lol.
> It really is kind of a relief just knowing there's others out there that
> are
> affected by the same thing, in some way, and joining together to support
> one
> another.
>
>
> I look forward to talking with you all more.
>
> Laura
>
>
>
>
>
> -----------------------
>
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>
> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
--
Kendall
An unreasonable man (but my wife says that's redundant!)
The reasonable man adapts himself to the world; the unreasonable one
persists in trying to adapt the world to himself. Therefore, all progress
depends on the unreasonable man.
-George Bernard Shaw 1856-1950
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