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Date: | Sun, 17 Jan 2010 08:50:45 -0500 |
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<<Disclaimer: Verify this information before applying it to your situation.>>
Thanks to every one who responded. There were 34 responses.
The majority responded that there is indeed a honeymoon period in the teen
years. Many have experienced it themselves or have teens who did. Some
adults have silent celiac and do not have reactions at all while still
having celiac. Alot of people with celiac have experienced varying degrees
of reactions at different times in their lives.
There were a few who questioned our diagnosis based upon our son's age at
the time of diagnosis and his reaction time. They also suggested we allow
him to test his system and eat gluten on a limited basis over time to see
what he can tolerate. They had done this with their children and they were
OK.
A number of adult celiacs had experienced this waning of symptoms, had been
eating gluten for years and had reoccurrance of symptoms and a multitude of
other problems. This was due to the old belief in the 40's that celiac went
away in the teen years.
Many were concerned that because this happens in the teen years, that teen
rebellion ect would cause him to cheat. Some had teens who did cheat and
others who were compliant.
The best summation (Thanks Mary) is "Dr. Peter Green in his book describes
Celiac as a condition that 'waxes and wanes' in an unpredictable pattern,
with a waning phase often in adolescence. Doesn't mean gluten doesn't do
intestinal damage and it doesn't mean that the side efx -- like, for
instance, the tendency of untreated Celiac to trigger other autoimmune
condition -- go away. "
My son is 14 and will turn 15 in February. He was raised with the idea that
we all have to make healthy choices and for him gluten free is a healthy
choice. He knows the consequences of accidentally ingesting gluten and they
are not pleasant. We discussed whether he would want to go off the gf diet
because of this non reacting episode. His answer was absolutely not. He
said he could have a reaction next time. He could go years without one but
be doing serious damage to his insides. He has more than coped all these
years on a gf diet, he has flourished. He is an athlete and wants to take
care of his body. He has traveled and camped with his scout troup ( without
me!) and done well. His classmates, teammates and friends get it. He has
been a great educator. Gluten free is an inconvenience. but he understands
short term gain and long term pain. And we trust that he will not cheat
because (I'm bragging now) he is an Eagle Scout.
Clare
MA
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