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Reply To: | Loretta Jay (NFCA) |
Date: | Tue, 25 May 2010 23:59:08 -0400 |
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<<Disclaimer: Verify this information before applying it to your situation.>>
The National Foundation for Celiac Awareness (NFCA) is actively working with
the FDA and pharmaceutical industry to address the problem of unlabeled
gluten in medication. To help demonstrate this dilemma, NFCA is interested
in hearing about specific case experiences that people with celiac disease
have had related to their need for oral medication.
There are three areas that that will help illustrate the problem of gluten
in medication:
1. Adverse effects resulting from taking a medication that had gluten in it
2. Being unable to take an oral medication in a timely manner because the
ingredients were unknown
3. Taking a medication despite not knowing if it was gluten-free
If you have experienced an event related to gluten in medication and would
like to share it, please email Loretta Jay at NFCA,
[log in to unmask] Please include the following:
1. Your name, address, phone and email
2. The name of the drug involved
3. A brief description of your experience
Please email me with any questions as well. Thank you!
Loretta Jay, M.A.
Director of Program Development
National Foundation for Celiac Awareness
Office: 215.325.1306 x104
Mobile: 203.984.8736
[log in to unmask]
www.CeliacCentral.org
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