Dear Joanne:

I am using the definition of "severe" that corresponds with the following
description:  Children who can sit in a chair but need adaptive seating for
trunk control and to maximize hand function.  Children move in and out of
chair sitting with assistance from an adult or a stable surface to push or
pull up on with their arms.  Children may at best walk short distances with a
walker and adult supervision but have difficulty turning and maintaining
balance on uneven surfaces.  Children are transported in the community.  They
may acheive self-mobility using a power wheelchair"

If he can sit on the floor with his hands free for play, he probably does not
fit the description.  Does he walk with a walker?
Charles Darr wrote:

> Susan,
> What is your definition of severe?  Alex is 4.5yrs old.  Has spastic quad
> CP.  Was on Gtube for 2.5 years and has other medical problems.  He can
> crawl ( bunny hop), feed himself but not any other self care.  I don't
> consider him  severe by any means but that's me.
> Joanne
> Joanne
> [log in to unmask]
> -----Original Message-----
> From: Susan Attermeier <[log in to unmask]>
> To: [log in to unmask] <[log in to unmask]>
> Date: Friday, September 24, 1999 1:00 PM
> Subject: RESEARCH PROJECT
>
> >Hi!
> >
> >I am a pediatric physical therapist and have gained a lot of insight by
> >being on this email list.  Now I have a question for you - For my
> >doctoral dissertation I am interviewing parents of 5-year old children
> >with severe cerebral palsy, collecting information on the mobility
> >skills of the children and quality of life for children and families.
> >Is there any way to set up a way for parents on this list to email me if
> >they would like to participate?  The telephone interview lasts about 30
> >minutes, and the family receives $20 for participating.  There is such a
> >great need for accurate information in this area, and parents are the
> >obvious best source.  Can somebody out there give me some guidance as to
> >how to proceed?
> >