Look if your fathers intuition is telling you strongly go w mri fine
If they fight you
SETTLE for an IMMEDIATE EEG AND PUSH FOR an mri LATER....
IF THEy totally ignore you?
It is time to change neuro
-----Original Message-----
From: Cerebral Palsy List [mailto:[log in to unmask]] On Behalf Of
JOHN RUNER
Sent: Tuesday, September 01, 2009 16:20
To: [log in to unmask]
Subject: Re: MRI for new seizures?
I have the sleep deprived MRI but the Doc keeps having me see his PA and nit
him and mary still has daily left side issues leading me to believe an MRI
is in order.
Thanks,
John Runer
> Date: Tue, 1 Sep 2009 10:50:53 -0600
> From: [log in to unmask]
> Subject: Re: MRI for new seizures?
> To: [log in to unmask]
>
> John,
>
> I agree with Meir and Kat; an EEG is a good first step, and based on
> the results of the EEG, an MRI may tell more. She may be falling to
> "the non-stroked side" after seizures because of "left-over electrical
> activity." If it doesn't clear up - is she able to sit up straighter
> after a while; that may indicate structural change, but I'm not a
> neurologist. I'm speaking mostly from personal experience -spastic
> diplegic CP since birth, a stroke resulting in left hemiplegia at 16.
>
> On Tue, Sep 1, 2009 at 10:20 AM, Kathleen Salkin<[log in to unmask]>
wrote:
> > You will need the neuro team to prescribe it - although I agree with
> > Meir - try for an EEG.
> >
> > Kat
> >
> > On Tue, Sep 1, 2009 at 12:00 PM, JOHN RUNER<[log in to unmask]> wrote:
> >> How to I get them to do the MRI?
> >>
> >> They seem to all be ignoring me.
> >>
> >> Thanks,
> >>
> >> John runer
> >>
> >>> Date: Tue, 1 Sep 2009 10:49:48 -0500
> >>> From: [log in to unmask]
> >>> Subject: Re: MRI for new seizures?
> >>> To: [log in to unmask]
> >>>
> >>> John,
> >>>
> >>> Thank you for bringing up this issue. My son Matt (12) has been
> >>> experiencing these same issues and we accounted the swallowing
> >>> issues to his reflux, yet no medication has resolved the issue.
> >>> This gives us another avenue to approach with the neuro next week that
we had not even considered.
> >>> Matt's seizures are under control (i.e. not visible, but do show
> >>> on the MRI), but for quite some time now he has been waking angry
> >>> (we accounted to age and communication) with swallowing issues (we
accounted to reflux).
> >>> Unfortunately for us, the anger goes throughout the day, though he
> >>> manages well at school.
> >>>
> >>> Lisa
> >>>
> >>>
> >>> -----Original Message-----
> >>> From: Cerebral Palsy List [mailto:[log in to unmask]] On
> >>> Behalf Of JOHN RUNER
> >>> Sent: Tuesday, September 01, 2009 9:33 AM
> >>> To: [log in to unmask]
> >>> Subject: MRI for new seizures?
> >>>
> >>> Should I request an MRI for Daughters new seizures? Mary had one big
> >>> one where she fell over to the left for a few days. Now she will
> >>> wake up very angry and then have swallowing issues the rest of the
> >>> day. She has had sleep deprived EEG but no MRI since she was a
> >>> toddler! and a CAT scan that the neurologist didn't like buy he didn't
order an MRI?
> >>>
> >>> Any thoughts?
> >>>
> >>> Thanks
> >>> John Runer Dad to Mary 9 CP=2C RH=2C Epilepsy=2C Heart and lung
> >>> problems.=20
> >>>
> >>>
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>
> --
>
>
> Kendall
>
> An unreasonable man (but my wife says that's redundant!)
>
> The reasonable man adapts himself to the world; the unreasonable one
> persists in trying to adapt the world to himself. Therefore, all
> progress depends on the unreasonable man.
>
> -George Bernard Shaw 1856-1950
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