Kendall.. love your PITA acrnom...
Long ago and far away there was a girl who tried levadopa, aka el dopa for what became an obvious reason. It turned my skin gray, and caused me to have lockjaw...
A few years later I tried another - SOMA........... made me sleep all day, passed out in college several times.....
Then there was an anti-seizure drug I tried... long name beginning with C... knocked me out.
Today hot showers & magnesium and feldenkrais... and sometimes going to the hot tub.
Thanks,
Tamar
~~~~~~~~
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________________________________
From: Kendall D. Corbett <[log in to unmask]>
To: [log in to unmask]
Sent: Fri, May 7, 2010 1:37:04 PM
Subject: Re: Interesting story out of Seattle...
Peter,
Thanks; next time I see my neurologist, I'll talk to him about it. The increased spasticity has become a real PITA.
On May 7, 2010 2:11pm, Peter Hunsberger <[log in to unmask]> wrote:
> On Fri, May 7, 2010 at 2:53 PM, Kendall D. Corbett
> [log in to unmask]> wrote:
> >
> > Story about a guy who was misdiagnosed with CP. For those of us with a
> > "true" CP diagnosis, wonder if this medication could be helpful? Since
> > there aren't many of us still looking for a cure, wonder if it's been tried,
> > or if it ever will be... I've wondered about Parkinsonian similarities as
> > I've gotten older.
> >
> > http://www.komonews.com/news/local/93047829.html
> > --
> If by "this medication" you are referring to drugs for Parkinson, then
> yes. My mother had Parkinson's Disease (a bit of a catch all
> diagnosis, though not as bad as CP) and among other things took
> Sinemet and Carbidopa to help treat the Parkinson's. My daughter who
> has a diagnosis of CP also takes these drugs. They haven't made any
> major changes in her life that we know of, but the lady who 1st
> introduced us to such treatment as a possibility told us it had made
> significant improvements for her son.
> --
> Peter Hunsberger
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