Karl,



Hi. I am also a person with cp and will have my 53rd birthday on 1/22/10. I am married (for 20 wonderful years) and work for the State of New York in the Office of Mental Retardation and Developmental Disabilities (OMRDD) in Albany, NY.



The reason why I am writing to you is regarding your comment on Aging and Cerebral Palsy. Dr. Matt Janicki used to work in the same office as I do and is studying the aging process in people with Cerebral Palsy and other disabilities. 



For your information,  I included his link and his bio from The University of Maine. 



Glad you are on this site.



Michael M. Orzel  



Innovative Solutions and Practice Implementation Unit 



NYS OMRDD 



44 Holland Ave. 



4th Floor 



Albany, New York 12229-0001 



 ( (518) 473-6255 Ê (518) 474-6224 



[log in to unmask] 



 



P Please consider the environment before printing this email. 



http://www.umaine.edu/mainecenteronaging/staff/?profile=315





Formerly the director for aging and special populations for the New York State Office of Mental Retardation and Developmental Disabilities, is the director for technical assistance at the University of Illinois at Chicago's Rehabilitation Research and Training Center on Aging and Developmental Disabilities. He also holds a faculty appointment at the UIC's Department of Disability and Human Development. Dr. Janicki was a Joseph P. Kennedy, Jr. Foundation's Public Policy Leadership Fellow, spending a sabbatical year at the National Institute on Aging and the United States Senate. He is the author of numerous books and articles in the area of aging, dementia, public policy, and rehabilitation with regard to people with intellectual and developmental disabilities and has lectured and provided training in aging and intellectual disabilities across the world. Dr. Janicki is the past-chair of the United States International Council on Mental Retardation and Developmental Disabilities and the past-chair of the aging special interest research group of the International Association for the Scientific Study of Intellectual Disabilities (IASSID). He serves on the Executive Committee of the IASSID as Treasurer and is the editor of the Journal of Policy and Practice in Intellectual Disabilities. He is currently the principal investigator of a US government-funded project examining how families are aided by community agencies in support of adults with intellectual disabilities affected by Alzheimer's disease. He was the project director of an effort to provide the World Health Organization with a series of background reports on promoting longevity among adults with intellectual disabilities throughout the world and was the co-principal investigator of a project under the aegis of The Arc of the US which provided training and technical assistance to state and local aging agencies in supporting older parents and other carers of adults with intellectual and developmental disabilities who live at home. 









Date:    Mon, 28 Dec 2009 12:03:25 -0800

From:    KARL THUNEMANN <[log in to unmask]>

Subject: A self-introduction



Hello, everyone --



I am a new subscriber to C-Palsy. I subscribed for a time several years ago, but never posted. This time will be different. Here's a profile of me.



I'm 65 years old. I have a mild case of spastic hemiplegic that affects my left side. For the most part I have been able to lead a normal life. I'm married, have two grown children, worked for 26 years as a journalist and five for the Alzheimer's Assn. Special steps I take to manage my cerebral palsy include regular chiropractic treatments, Feldenkrais treatments and the study and practice of tai chi. For the past few months I have been working with a physical therapist on balance, falling and walking issues. 

 For many years I've been frustrated by the lack of good information about CP as it relates both to aging and to people with my level of involvement. Over the next few weeks I'll share my main issues. I look forward to hearing your responses, and replying to you as well. 



Karl Thunemann

Redmond, WA

IMPORTANT NOTICE: This message and any attachments are solely for
the

intended recipient and may contain confidential information which
is, or

may be, legally privileged or otherwise protected by law from
further

disclosure. If you are not the intended recipient, any disclosure,


copying, use, or distribution of the information included in this
e-mail

and any attachments is prohibited. If you have received this 

communication in error, please notify the sender by reply e-mail
and 

immediately and permanently delete this e-mail and any attachments.


-----------------------

To change your mail settings or leave the C-PALSY list, go here:

http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy