<<Disclaimer: Verify this information before applying it to your situation.>>

Summary regarding MyCeliacID saliva test:

Thank you ALL for the great feedback. I received many responses and the majority seems 
to indicate that the saliva test is probably worth exploring further.
 
I got several responses comparing it to the Enterolabs stool test and the antibody test 
from Canada. From what I understand the Enterolabs version tests for gluten sensitivity 
and the one in Canada tests for antibodies and the MyCeliacID one tests for the Celiac 
gene itself.
I guess my takeaway from it all is this:
1.   It would be nice to do the test at home and find out a bit more before our insurance 
company knows her status.

2.   It would be nice to feel reasonably comfortable ruling it out if it came back negative 
or being more aggressive about treatment if not.

 

Some examples of responses include:
 
I haven't tried it, but I trust the company, Prometheus, who is marketing it.  They have 
been experts in the field of celiac disease for many many years so I would trust them.
 
I don't know anything about the test, but thought I'd let you know in case you aren't 
aware that UCSD has a Celiac Disease Center and a new pediatric specialist. They might 
be a good resource for you - http://celiaccenter.ucsd.edu/ 
<http://celiaccenter.ucsd.edu/>
 
I did the saliva test for myself and found it to be a good experience -- company sent 
everything I needed, no dr's orders needed, no blood draw, the results were clear and 
easy to understand. 
 
This test cost you $369, I suggest you click on the FAQ tab and it answers all your 
questions and its painless.
 
My understanding is that if your daughter does not have the genes you 
can almost certainly rule out celiac and move on to other things. If she does test positive 
for the genes, then further exploration is merited – and she still might not have celiac -- 
even with the genes.
 
I am very interested in this – however, I am trying to find out how this one compare to 
the original in Canada and why that one cost $50 and I believe this one cost over $300. 
 
The test would show if she carries the gene.  If she does, it means that at sometime in 
her life, she COULD develop celiac.  It does not mean that she already has celiac.  If she 
does not carry the gene the odds are almost impossible that she would ever develop 
celiac.  
 
The home test from Prometheus is only a genetic test that screens for DQ2 and DQ8. 
Although DQ8 and DQ2 are associated with 95-98% of those with CD, there is a small 
chance one could have CD without those genes. 
 
I highly recommend the genetic testing through Kimball labs and U of Chicago Celiac 
center http://www.celiacdisease.net/testing <http://www.celiacdisease.net/testing>
 
I don't know anything about the test, but thought I'd let you know in case you aren't 
aware that UCSD has a Celiac Disease Center and a new pediatric specialist. They might 
be a good resource for you - http://celiaccenter.ucsd.edu/ 
<http://celiaccenter.ucsd.edu/> 
 
….suggest that you contact Dr. Kimberly Newton, pediatric/gastroenterologist at Rady 
Children’s Hospital, San Diego 858 966-4003.  Dr. Newton sees children under the age of 
18 and she is associated with the Wm. K. Warren Medical Research Center for Celiac 
Disease at UCSD 858 822-1022.

Visit the Celiac Web Page at Http://www.enabling.org/ia/celiac/index.html
Archives are at: Http://Listserv.icors.org/SCRIPTS/WA-ICORS.EXE?LIST=CELIAC