John,

I don't want to scare you...but our son started experiencing left sided weakness in April/May of 2008...by time we got the MRI done (November of 2008)...long list of problems getting it done...he was diagnosed with a bleed into the spinal cord which resulted in central cord degeneration...the bleed was secondary to a spinal stenosis C4-C6.  He now is medically classified as a C4-C6 quad...with dystonic storms.  He is slowly losing his fight to live due to the central spinal cord degeneration...is totally bed ridden at this point...and in intractable pain much of the time.  This could have all been prevented had someone taken me seriously...and had the appropriate test been done when I first saw the onset of new problems.  For our son it is too late...however, I cannot emphasize loudly enough to scream from the rooftops if that is what it takes to get your daughter the care she needs and deserves.  In our case, it was physicians who didn't understand the real risk of what "might" be going on...

I guess what I am saying is follow your instincts...and realize that time may be of the essence.

Cheryl Kloss



-----Original Message-----
>From: JOHN RUNER <[log in to unmask]>
>Sent: Sep 13, 2009 10:54 AM
>To: [log in to unmask]
>Subject: MRI Scheduled Highly looking for New Neurologist in Idaho
>
>=20
>
>Hello=2C
>
>Mary still seams to be having complex partial seizures and falling to the l=
>eft even though she has only a left hemisphere stroke history.   The Genera=
>l Doc she sees said she needed MRI yet wouldn't prescribe it.  The Neurolog=
>y PA won't let us see the doc and said their are a lot of concerns anxiety =
>and total loss of left side motor control among them and he is just going t=
>o see what happens with her!   We got the MRI through a Chiropractor who is=
> consulting with a Nuerologist (and trying to get Mary in to the   the new =
>Docs schedule)!   Is this the state of Idaho medical care?  I just don't un=
>derstand the lack of trying to  find out what is causing my daughter s new =
>problems and trying to treat or manage the new problems.  Even my daughters=
> respiratory (This Doc has multiply Medical degrees) doc dosen't know why  =
>there isn't further ivnestigation and why she is seeing PA.
>
>John Runer
>Challis=2C Idaho
>
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