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Date: | Fri, 20 Nov 2009 08:13:17 -0500 |
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<<Disclaimer: Verify this information before applying it to your situation.>>
>
> First, thank you for the supportive responses. I was feeling
> overwhelmed, so it's good to know that others are on the same
> journey (and doing fine).
> Summary:
> . There are people with both diagnoses, but the two are considered
> unrelated conditions.
> . One piece of good news is that the gluten free diet is good for
> both conditions.
> . Crohn's also responds positively to the Specific Carbohydrate
> Diet (and people suggested various texts, websites, and cookbooks),
> or the Paleo diet
> http://www.pecanbread.com/
> http://www.scdiet.org/
> http://www.breakingtheviciouscycle.info/
> . Some people thought that I should make sure she is not just
> responding to hidden gluten or other food sensitivities (Definitely
> no gluten, no milk, maybe no soy).
> . People also provided links to some research including stem cell
> and new drugs
> Low dose naltrexone has been used for those with Crohn's
> http://www.lowdosenaltrexone.org/ There is an ongoing clinical
> trial
> http://clinicaltrials.gov/ct2/show/NCT00663117?
> term=naltrexone&rank=4
> . Some suggested doctors but I am happy with the one we now have
> (I waited a year to get an apt. with him because he is on the board
> of a national celiac organization and works at the medical school
> where my daughter is enrolled--she is 23 and a first year medical
> student).
>
> Best of all was the compassion evident in the responses.
> Thank you again,
> Lis
>
* Please remember some posters may be WHEAT-FREE, but not GLUTEN-FREE *
Archives are at: Http://Listserv.icors.org/SCRIPTS/WA-ICORS.EXE?LIST=CELIAC
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