Cindy,
I learned to drive ; i learned to put any fear I might get into my left leg. I had a wonderful instructor from the calif school of driving. it was OTs who gave me real hope that I could drive a car. I have a moderate to severe cp, (it's gotten better over the years), anyway, they said, if Jerry can drive, so can you, and they showed me a video of this guy driving with some adaptations. it took me 6 months, but i got my license first time around. (better than my cousins!) i drove for 21 years. but that was before road rage and people with no manners took over the roads of the bay area.
Thanks,
Tamar
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Tamar Mag Raine, Commissioner,
Oakland Mayor's Commission on People with Disabilities
[log in to unmask]
http://www.zazzle.com/TamarMag*
www.cafepress.com/tamarmag
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
________________________________
From: Linda Macaulay <[log in to unmask]>
To: [log in to unmask]
Sent: Sunday, May 17, 2009 6:25:55 PM
Subject: Re: Mild to moderate CP and children?
Cindy,
You are in Lancaster, PA? Me too...Age 36, mild cp...
Linda Macaulay
On May 17, 2009, at 12:32 PM, Cindy Mallory wrote:
> My son got a wheel chair at about that age. I called the insurance company
> first and was told it wouldn't be covered since son was ambulatory; but
> then I had an OT who presently works in Lancaster, PA write up a lengthy
> script for the neccessity for a wheelchair and insurance covered it. My son used
> it at school because of fatigue walking down the halls and also on long
> outings to the zoo or museum. By high school he got another wheelchair
> because of growth and I gave the other one to charity. At present, he refuses to
> use this wheelchair and is walking long distances much better although he
> gets blisters on feet when overextending himself. My suggestion is to get an
> evaluation by an OT who specializes in W/C and once your child gets one,
> insurance doesn't seem to refuse another as child ages approximately every 5
> years I think. I believe your child would quickly outgrow the jogger
> though. By the way, I consider my son with mild CP as well. He's 18 now and I'm
> going to see this OT for a driving evaluation because I think he would need
> hand controls since he gets spasms in his legs with excitement or fear. So
> we're on another adventure.....
> Cindy
>
>
> In a message dated 5/17/2009 12:09:34 P.M. Eastern Daylight Time,
> [log in to unmask] writes:
>
> Hello=2C=20
>
> I am concerned Mary's (9) right side weakness is showing up more
> throughout=
> the day as she ages. For instance yesterday she slept well but woke up li=
> mping very heavily on her right weak leg=2C this usually only happens at
> th=
> e end of a stressful day. Are there any good links about the effects of
> g=
> rowth/stress on a child with mild to moderate CP? To day her limp is
> fairl=
> y mild but I have noticed it throughout the day for the last year and
> befor=
> e it was only in the evening. I have also noticed when tired her right
> foot=
> is turning toe in more. I can't get her walker for while but I am trying =
> to get her a used wheel chair or jogging stroller for longer outings.
>
> Thanks=2C
>
> John Runer
>
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