Because Daniel can walk (and even run for short distances), I've had some problems with people not understanding that he has little stamina. They'd complain about him "just quitting."  Solution: we got him a wheelchair at a thrift store. Now when we need to walk a ways, he can ride (and carry our stuff). His earlier teacher (for K-3) was great about it -- she always asked to borrow it for field trips. 

 

With the tachycardia and the brain stress, I'd recommend looking into some assistive mobility for longer "walks." You definitely don't want to precipitate a heart attack or a stroke. The silver lining to this event may be that the school starts to take "stress" on her fragile system more seriously.

 

Virginia
 
> Date: Tue, 12 May 2009 18:14:55 -0600
> From: [log in to unmask]
> Subject: Mary Falling to the side?
> To: [log in to unmask]
> 
> Hello,
> 
> Mary went on a field trip where she walked with her class about half a mile and then went in a building once in the building she told the teacher she was hot and wanted to take of her coat. The teacher stated that before she could help Mary fell very hard to the left (her strong side) and seemed a little off but new where she was and what she was doing and her color was o.k. We took Mary to the local clinic and he oxygen was 92% her heart rate was 108 and I sent an ekg over the phone to her cardiologist, nothing back on that yet. Mary still seems happy and oriented but a little "glossy eyed" and a little more sensitive than usual even for her. Mary gets pediasure for snack in the morning but did miss it today. The teacher said it looked like her left side just gave out this is frustrating because her stroke was on right side of her brain.
> 
> Any thoughts or similar experiences Mary is 9 (RH with mild CP and stroke at birth)
> 
> John Runer
> 
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