i hope you are paying attention to what Meir is telling us because that is what is in our future.
--- On Sun, 5/10/09, Meir Weiss <[log in to unmask]> wrote:
> From: Meir Weiss <[log in to unmask]>
> Subject: Re: Aging with CP
> To: [log in to unmask]
> Date: Sunday, May 10, 2009, 10:24 AM
> SIIIGGHH
>
> JUST A WEEK AGO
>
> Found out the result of that mri about two months
> ago!!!!!?????
>
> Took two months to get the results grrrrrrr
>
> So I have the same spinal stenosis as my mother and
> grmother on mothers side
>
> Genetics from birth
>
> NO surgery
>
> Lyrica
>
> Damned expensive!!!!!!!!!
>
> They can AT LEAST start sending me hope you feel better
> greeting cards in
> the mail for the monies I give them )(by force!!!!!)
>
> So I'm relieved
>
> -----Original Message-----
> From: Cerebral Palsy List [mailto:[log in to unmask]]
> On Behalf Of
> Carla MacInnis
> Sent: Sunday, May 10, 2009 09:17
> To: [log in to unmask]
> Subject: Re: Aging with CP
>
> At almost 55 (next Sunday), I'm still on my feet. Like you
> I find uneven
> terrain tricky.
>
> I have osteo-arthritis of the thoracic spine (diagnosed at
> age 18) and the
> fibromyalgia, diagnosed 15 years ago competing with the
> implications of
> cerebral palsy. It's difficult to say which is the culprit
> in a lot of my
> deficiencies. I'd have to say it's my holey heart that's
> causing most of the
> problems/issues with the pronounced fatigue factor
> associated with aortic
> insufficiency.
>
> The best thing I ever did for myself was to invest in my
> own therapy tub. A
> lovely big tub with 63 jets. It made no sense to have
> hydrotherapy at the
> hospital's rehab unit, or at the rehab centre an hour away,
> when the
> benefits would be defeated on the car ride home (super
> bumpy). Now, I can do
> my water exercises whenever I please. It's been a HUGE help
> and well worth
> the money spent. Also, being able to keep the muscles
> relaxed in a natural
> way has allowed me to remain essentially drug free. Drug
> free is critical
> because a stoner spastic is not pretty! :)
>
> Okay, people. Share your aging stories. We need to compile
> a book for
> publication. There's definitely a need for it.
>
> Cheers!
>
> Carla
> http://home.netscape.ca/~terrier
>
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