Ken,
It's funny sometimes when Janet and I go out shopping or to dinner, people
don't know who to talk to! I look more physically disabled, so they'll talk
to her first, then her non-standard speech becomes apparent, and they don't
know what to do! We do a top ten list (a la Letterman), and one of the top
three items on it is "What does s/he want?"
On Sat, Aug 9, 2008 at 12:28 PM, ken barber <[log in to unmask]> wrote:
> yeah, i know i get ignored by some. they view judy as my keeper. instead of
> listening to me they look at her.
>
> like in a resturant, they ask her what i want.
>
>
> --- On Wed, 7/30/08, Kathy <[log in to unmask]> wrote:
>
> > From: Kathy <[log in to unmask]>
> > Subject: Re: Dealing with the public if you have CP
> > To: [log in to unmask]
> > Date: Wednesday, July 30, 2008, 9:14 PM
> > Yeah I know what you mean - I have two degrees myself and am
> > in a
> > wheelchair, too. Unless I say something witty at first,
> > they ignore me.
> > It gets old fast, doesn't it?
> >
> > Kat
> >
> > Bob Segalman wrote:
> > > Kat
> > >
> > > Most people who see me on the street view me as
> > defective. They ignore the
> > > name plate on the back of my wheelchair the says:
> > >
> > > "Bob Segalman, Ph.D., Sc.D. (Hon.) - the only
> > American with cerebral
> > > palsy known to hold two doctorates"
> > >
> > > - Bob
> > >
> > > -----Original Message-----
> > > From: Cerebral Palsy List
> > [mailto:[log in to unmask]] On Behalf Of
> > > Kathy
> > > Sent: Wednesday, July 30, 2008 4:56 PM
> > > To: [log in to unmask]
> > > Subject: Re: Genetic Link to CP??
> > >
> > > Well, I don't consider myself a
> > "defect," either (or else I'd be sitting
> > > at home doing nothing, like a lump) but unfortunately
> > AB people think we
> > > are. :( Hell, I know plenty of deaf/HOH people who
> > don't want to
> > > identify themselves as disabled because they don't
> > want to be seen as
> > > defective - of course that means they don't wear
> > the hearing aids or
> > > cochlear implant processors that could help them so
> > much.
> > >
> > > You really stirred up some hornets with this one! ;)
> > >
> > > Kat
> > >
> > > Linda Macaulay wrote:
> > >
> > >> James,
> > >>
> > >> Read or don't read what I post to the list.
> > Form your own thoughts
> > >> and opinions and express them as you like. I got
> > the email and
> > >> thought it would be worthy of some comment....and
> > apparently I was
> > >> right ;)
> > >>
> > >> For the record, I like who I am and certainly
> > don't think I am
> > >> DEFECTIVE...One of the reasons the article title
> > made me react so
> > >> vehemently "No Way!" However, I was
> > intrigued and read on and perhaps
> > >> there is a grain of salt to a genetic connection
> > that may make
> > >> conditions such that CP COULD occur. Certainly
> > doubt it would ever be
> > >> found to be like Down's Syndrome or other
> > genetic diseases.
> > >>
> > >> Linda
> > >>
> > >> On Jul 30, 2008, at 5:41 PM, James Fee wrote:
> > >>
> > >>
> > >>> [log in to unmask] wrote:
> > >>>
> > >>>> Hang on, I don't think Linda was
> > calling CP a genetic defect, just
> > >>>> that CP
> > >>>> could be caused by genetic mutations.
> > >>>>
> > >>>>
> > >>> I don't think she CALLED it anything, just
> > suggested we read an
> > >>> article about it might be..
> > >>>
> > >>> Jim Fee
> > >>>
> > >>>> Kat
> > >>>>
> > >>>> Original Message:
> > >>>> -----------------
> > >>>> From: James Fee [log in to unmask]
> > >>>> Date: Wed, 30 Jul 2008 17:17:51 -0400
> > >>>> To: [log in to unmask]
> > >>>> Subject: Re: Genetic Link to CP??
> > >>>>
> > >>>>
> > >>>> I really wish people would get this
> > straight, and I don't know why
> > >>>> if urks me SO MUCH that they don't,
> > perhaps its a male virility thing.
> > >>>>
> > >>>> There is a genetic defect that causes a
> > lower of calcium in the
> > >>>> bones, children born with this defect
> > break bones wille-nillie...in
> > >>>> fact some parents have been accused on
> > child abuse because of it.
> > >>>> But the broken bones ARE NOT a genetic
> > defect the lower calcium is.
> > >>>>
> > >>>> ITS THE SAME WITH CP, DAMN IT. CP
> > (simplified to the ridiculous) is
> > >>>> broken nerve fibers. SOMTIMES those
> > broken nerve fibers ARE CAUSED
> > >>>> by a genetic defect in the Mom, BUT CP IS
> > NOT a genetic defect.
> > >>>>
> > >>>> Okay, I'll go back to my corner now.
> > >>>> Jim Fee
> > >>>>
> > >>>> Linda Macaulay wrote:
> > >>>>
> > >>>>
> > >>>>> Here's something I found on
> > BabyCenter -- take a look!
> > >>>>>
> > >>>>> Australian study seeks genetic roots
> > of cerebral palsy
> > >>>>>
> > >>>>>
> > >>>>>
> > >>>>>
> > >
> >
> http://www.babycenter.com/204_australian-study-seeks-genetic-roots-of-cerebr
> > >
> > >
> > >>>> al-palsy_5234805.bc
> > >>>>
> > >>>>> (If clicking doesn't work, simply
> > cut and paste the link into your
> > >>>>> Web browser.)
> > >>>>>
> > >>>>>
> > >>>>> When I first saw the title, I thought
> > "No way!", but then in
> > >>>>> reading it, maybe...
> > >>>>>
> > >>>>> Heck, my mom and I both have Factor V
> > Leiden which is a genetic
> > >>>>> mutation to be more prone to blood
> > clots. When we learned I had it
> > >>>>> and then mom too, we realized that was
> > probably why she had so many
> > >>>>> miscarriages and that I came
> > early...placenta bloodclotting...thus
> > >>>>> why I must take injections of blood
> > thinner when pregnant and be
> > >>>>> monitored closely...
> > >>>>>
> > >>>>> Any thoughts?
> > >>>>>
> > >>>>> Linda
> > >>>>>
> > >>>>>
> > >>>>>
> >
> > -----------------------
> >
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> > here:
> >
> > http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
>
>
>
>
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>
> To change your mail settings or leave the C-PALSY list, go here:
>
> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
>
--
Kendall
An unreasonable man (but my wife says that's redundant!)
The reasonable man adapts himself to the world; the unreasonable one
persists in trying to adapt the world to himself. Therefore, all progress
depends on the unreasonable man.
-George Bernard Shaw 1856-1950
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