sorry. try getting moshe feldenkrais books at library or amazon. it's interesting, and gentle, yet powerful work essentially retrains the brain-body. you can look in your local phone books for feldenkrais teachers. they have two types of sessions, private, which are expensive, or awareness through movement classes that cost between 5 - 10 bucks.
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http://www.zazzle.com/TamarMag*
Tamar Mag Raine
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www.cafepress.com/tamarmag
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----- Original Message ----
From: Michael H. Collis <[log in to unmask]>
To: [log in to unmask]
Sent: Wednesday, April 30, 2008 11:42:45 AM
Subject: Re: trouble talking, and trouble eating
Mag, all that site had were links to more sites. I tried it... it,
---- Original message ----
>Date: Wed, 30 Apr 2008 00:06:29 -0700
>From: Tamar Raine <[log in to unmask]>
>Subject: Re: trouble talking, and trouble eating
>To: [log in to unmask]
>
>mary,
>in the last two years i have made great progress with my speaking by having feldenkrais lessons. I am learnng to sense when my body is going to get tight and/or legs or arms do their dance. in fact it has now become impossile for me to speak when i am the least bit tense, where befoe i would try to force the words out and it wouldnot be clear to anybody but my sister or mom. now strangers understand me 90 % of the time. I wish i had worked with a feldenkrais teacher when i was a kid! The thing is when i have better control of my body, eating is easier! i also don't choke as much. those extra movemens we make, and the energy we spend trying to control them, takes a lot of energy. I think when you get more relaxed, digesting food will be easier. in the meantime, get a blender, and make fruit smoothies and green salad smoothies. These are good if chewing tires you out. I have them all the time.
>
>
>learn more about feldenkrais at www.feldenkrais.org
>oh, i was full term and i am double jointed, which sets me up for pain
>when i use my laptop becuz of the touch pad 4 the mouse.
>
>
>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>http://www.zazzle.com/TamarMag*
>Tamar Mag Raine
>[log in to unmask]
>www.cafepress.com/tamarmag
>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
>
>
>----- Original Message ----
>From: Mary Powers <[log in to unmask]>
>To: [log in to unmask]
>Sent: Tuesday, April 29, 2008 8:56:35 PM
>Subject: trouble talking, and trouble eating
>
>Hello,
>
>I am in an odd situation.
>
>I was premature, 11 weeks early, under 3 pounds
>
>and I have many of the features of CP but - I don't have a standard
>type of it.
>
>after talking with a number of doctors, this is what we believe. my
>doctors and I. that I have the brain injury that causes CP. but also,
>I am 'hypermobile' which is multiply double-jointed. my hands, wrists,
>elbows, shoulders, feet, knees, thighs etc - all double-jointed.
>
>and what we think is that the hypermobility gave my muscles the ability
>to move in ways they 'shouldn't.' that means I do not have spasticity,
>which is what I would have. and I have noticed in everyday life, that
>I can make a lot of movements, such as turning my arms in unusual ways,
>that non-disabled people cannot do.
>
>(this is not something I do regularly. it was something I showed a few
>people when they dared me to demonstrate what I was talking about, that
>I could move my arms 'funny.' I was pretty young.
>
>what I do have are problems with:
>
>eating. eating takes a lot of Work, so I don't like to do it.
>
>speaking. producing clear, comprehensible speech is difficult for me.
>
>walking. due to balance and vestibular problems.
>
>digesting food. physically eating (moving silverware) is hard, and
>then digesting food is hard.
>
>problems with seizures and vision, similar to what is described.
>
>sensory integration issues.
>
>
>I have made a LOT of progress.
>
>I have very supportive, kind people in my life.
>
>but - this is unusual, so I have a couple questions:
>
>
>1. how do people cope with difficulty speaking and eating? physical,
>not psychological.
>
>those are two of my biggest problems right now.
>
>
>and
>
>2. does anyone else have an unusual type of CP?
>
>where, the issues are not standard.
>
>but - certain features of the brain stuff realllly affects your life.
>
>
>
>that makes understanding difficult for me.
>
>
>
>take care,
>
>
>Mary Katherine
>
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