Meir,

I wonder if the family has tried more traditional treatments for dystonia.  
This comes across as a late onset form of dystonia, but it seems to me that  
drugs like baclofen (oral or ITB) might be helpful. It looks like they're  
in South Florida, and one of the best research centers on childhood  
movement disorders is at the University of Alabama/Birmingham. If it truly  
progresses for five years and then stops, it seems like a fairly  
straightforward research problem to find out what's stopping the production  
of the neurotransmitter inhibiting the dystonia, or what's causing the over  
production of the neurotransmitter causing the dystonia, and what then  
causes the problem to reverse itself. This could potentially impact people  
with "traditional" dystonic (athetoid) or mixed CP.

Kendall



On Jun 11, 2009 8:28am, Meir Weiss <[log in to unmask]> wrote:






> Family pushes for cure 4:31


> 11-year-old Tyler Staab has a somewhat unknown disorder that causes


> uncontrollable muscle spasms. It's called dystonia. Scientists are working


> on finding its cause and a cure. The Staab family is leading this effort.





> ? CNN.com








> Source: CNN | Added June 10, 2009




















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> pushes for cure



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