You can always post on our yahoo site, CPAdults.
Kat
Mary Powers wrote:
> hello,
>
> I am thinking about starting a website/message board for adults with CP.? with the saying:? because we grow up
>
> in other words, why such a site is needed.? :)? anyway I am not making any promises and I am recovering from illness so it would be several months at least.? However, I have a library science degree and a lot of Net experience.
>
> if there was a site, what topics would you like to see?
>
> mine would include:? dating, marriage, children (the child debate and living a fulfilling life either with or without kids.? I do not have them), pets :), money, employment, and thoughts on getting older.? not as lectures but short pieces with people's ideas and experiences.? also, suggestions for kids in terms of mentoring, careers, etc.
>
> for people who do not work:? what do you do?? how do you want to spend your time?
>
> nonverbal methods of communication.? this has been a huge area of success for me, in terms of, I can do alot nonverbally that I cannot do verbally.
>
> the experience of more unusual types of CP, I have ataxia with various features like fluctuating tone.? experts recognize it but I did get skepticism from one doctor.
>
> how to define our lives so that we have control, rather than being defined by (in my case, muscle weakness and tremor).
>
> and assistive equipment and making it more comfortable and attractive.? I would like to see nicer wheelchairs, pretty colors etc.
>
>
> using creativity to have nonstandard careers, if working outside the home is not desired/possible.
>
>
> those are some ideas.
>
>
>
> please let me know what you think
>
>
> thanks
>
> Mary Katherine
>
>
>
>
>
>
>
>
>
>
>
> -----------------------
>
> To change your mail settings or leave the C-PALSY list, go here:
>
> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
>
>
>
-----------------------
To change your mail settings or leave the C-PALSY list, go here:
http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
|
