Frustrating thing is, Mag, that every time I get an email from UCP that 
talks about freedoms, it seems to target only those of us with 
caregivers.  Well, I'd venture to say a majority of us are living just 
fine without caregivers and would like to see more research on those of 
use who don't need them (at least not yet).  I sometimes think that 
because we don't need help that people are accustomed to, we fall into a 
bucket that gets dropped out of sight.

On a completely unrelated tack, I saw "Mamma Mia!" just now and loved 
it!  It's so much fun and I was bopping to the beat in my chair!

Kat

Tamar Raine wrote:
> I think we should all write to UCP, asking for a nation-wide study of older people with cp.  it's very frustrating.
>
>  
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> http://www.zazzle.com/TamarMag*
> Tamar Mag Raine
> [log in to unmask]
> www.cafepress.com/tamarmag
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
>
>
> ----- Original Message ----
> From: Michael H. Collis <[log in to unmask]>
> To: [log in to unmask]
> Sent: Sunday, July 20, 2008 1:00:49 PM
> Subject: Re: Hi...I'm Annie
>
> Hi Annie,
>
> Unfortunately, no, there is not much out there for adults w/ C.P.  The Baby Boom generation were the first C.P.er's to become integrated (to a point) in society.  Before that, people would hide those of us with C.P. or put us in an institution.  I think Ken, Kat, Mag, and Kyle would agree.  The reason why we were somewhat more integrated in sociaty was because of the Nazi's T4 program, in which the lives of those deemed less than perfect (MR, CP, Autism), were murdered, and our parents wanted better for us.
>
>
> ---- Original message ----
>   
>> Date: Sat, 19 Jul 2008 20:57:24 -0700
>> From: Annette Koonce <[log in to unmask]>  
>> Subject: Hi...I'm Annie  
>> To: [log in to unmask]
>>
>> Hi.....my name is Annie. I'm  62 year old woman in Arkansas who was born in Cape Town South Africa. My parents brought me to the States when I was three for treatment of my CP. I am a psychotherapist who was forced to retire in 1996 because I totally lost the use of my legs. I am now completely dependent on my daughter. (The state pays her to care for me). I am hoping to hear from other adults because so little is known about those of us who have CP in later life. 
>>
>> I read the 1993 article from the state of New York which was cited in a previous email. I must say I wasn't impressed by it.... surely there is some other information somewhere which is more current! Can anyone out there help?
>>
>> Thanks so much. I can't wait to get to know y'all on the list.
>>
>>
>>
>>      
>>
>> -----------------------
>>
>> To change your mail settings or leave the C-PALSY list, go here:
>>
>> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
>>     
>
> -----------------------
>
> To change your mail settings or leave the C-PALSY list, go here:
>
> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
>
> -----------------------
>
> To change your mail settings or leave the C-PALSY list, go here:
>
> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
>
>
>   

-----------------------

To change your mail settings or leave the C-PALSY list, go here:

http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy