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Date: | Sat, 2 Dec 2006 08:43:08 -0700 |
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>. Then I went to my physician armed with research
> materials and my request for medication changes and additional testing.
> We
> must be pro-active to obtain results.
I too agreed with Dr. Don on this. I have been pro-active for both myself
and my son numerous times with numerous doctors. This includes driving 6
hours each way for an appointment with a "specialist endocrinologist" to end
up with a 24 hour test on cortisone (all in same container) and to be told
that all the symptoms had nothing to do with my thyroid. Each time I have
presented doctors with the research etc we have either been dropped from the
practice or completely ignored and then to be told when starting with a new
doctor that I am "doctor hopping" and I am looking for a doctor that will
tell me what I want to hear. I can't even find a doctor that will treat my
13 year old with stupid tsh at 2.8 and symptoms everywhere. I am extremely
sad to say that it also matters on luck. Luck to find a doctor that is not
so sure that THEY know better than you your history, your family history and
what a devastating disease this is.
Now I am trying to find a way to get the testing for my son he needs with no
health care so I cant even search for a doctor for him because I lost our
healthcare because I make $56 above the poverty line. My armour was only
upped because my tsh finally showed 8.9 because of the lithium -- now that
np at the psych clinic can't refill my armour at 3.5 grains because the
thyroid med is not a psych drug. funny but they test for it, and you cant
begin to get any other drugs to work without the thyroid being right as a
baseline. So I have to convince a doctor to write a prescription to keep it
at same level.
Sometimes even begging with the research in hand does not work. And when
your thyroid is off you cant even function well enough to fight for what you
need.
Nancy
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