Mike,

Since Michael's only 5, he's probably quite a bit away from those
conversations.  At 5, like most boys, I wanted to be a cowboy or a
policeman, but by the time I was an early teenager, I'd settled on
more realistic occupational goals - (doctor, teacher, attorney).  At
5, everyone should dream, and dream big.  There's plenty of time for
reality in the later years.  Our Voc Rehab won't even start working
with kids with disabilities until they're in junior high or freshmen
in high school.  Knowing that Voc. Rehab is an option though is a
great thing!

On Fri, Oct 10, 2008 at 1:46 PM, Michael H. Collis <[log in to unmask]> wrote:
> A little heart to heart talk with Voc, Rehab. wouldn't hurt either.   As Michael grows older, he might choose a career that he physically can't do, and all the well wishers can not change that fact. :(
>
> ---- Original message ----
>>Date: Fri, 10 Oct 2008 10:36:13 -0600
>>From: "Kendall D. Corbett" <[log in to unmask]>
>>Subject: Re: Hello/Question
>>To: [log in to unmask]
>>
>>Dina,
>>
>>Kat's absolutely right about differences by state, so get in touch
>>with your state human services or Medicaid office.  You might also
>>want to start looking at a "special needs trust" for your son.  Those
>>also vary somewhat by state so finding an attorney locally would be
>>helpful.  There are resources for kids with disabilities in
>>educational settings that can be helpful, and networking with parents
>>involved in those systems could be a great help.  Id get in touch with
>>your local school district and ask about a Parent Resource Center, or
>>a Parent Information Center.
>>
>>
>>A couple of good places to start getting information on what you and
>>your son need to do to prepare for his future would be your state
>>develiopmental disabilities planning council and the University Center
>>of Excellence on Developmental Disabilities in your state.  Here are
>>links to the national organizations for both of those, so you can find
>>information for your state:
>>
>>Association of University Centers on Disability:
>>
>>www.aucd.org
>>
>>And the UCEDD directory by state:
>>
>>http://aucd.org/directory/directory.cfm?program=UCEDD
>>
>>National Association of Councils on Developmental Disabilities
>>
>>www.nacdd.org
>>
>>and the member council directory
>>
>>http://www.nacdd.org/pages/councils.htm
>>
>>
>>Another source that has links to a lot of really valuable information is:
>>
>>National Information Center for Children and Youth with Disabilities
>>P.O. Box 1492
>>Washington, DC 20013-1492
>>1-800-695-0285 (Voice/TT)
>>(202) 884-8200 (Voice/TT)
>>
>>http://www.nichcy.org/Pages/Home.aspx
>>
>>On Fri, Oct 10, 2008 at 8:11 AM, Dina Koblence <[log in to unmask]> wrote:
>>> Good morning everyone!
>>>
>>> I have a son, Michael, who is five years old and is diagnosed with hypotonic
>>> quadraplegic cerebral palsy. I agree with people in this group, that there is a
>>> lot more information on and about children with cp than that of adults. But
>>> even so, I feel that I have to "reinvent the wheel" with my choices for Michael
>>> all the time. Maybe because each cp is very specific or maybe because I
>>> haven't really found the right resources, I am not sure...
>>>
>>> Even though he is just five, I try to plan for his financial future now. In the
>>> process I realized that I needed to know what governmental benefits he would
>>> be eligible for once he is 18. Right now Michael is included in our family
>>> insurance plan. How is it be to get a regular medical insurance coverage for
>>> him when he is 18? What does Medicaid cover? Does it cover any of the
>>> therapy? What Social Security benefits are there for a person with CP? Is
>>> there anything else?
>>>
>>> I appreciate greatly any information you could share with me.
>>>
>>> Thanks,
>>> Dina Koblence
>>>
>>> -----------------------
>>>
>>> To change your mail settings or leave the C-PALSY list, go here:
>>>
>>> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
>>>
>>
>>
>>
>>--
>>
>>
>>Kendall
>>
>>An unreasonable man (but my wife says that's redundant!)
>>
>>The reasonable man adapts himself to the world; the unreasonable one
>>persists in trying to adapt the world to himself. Therefore, all
>>progress depends on the unreasonable man.
>>
>>-George Bernard Shaw 1856-1950
>>
>>-----------------------
>>
>>To change your mail settings or leave the C-PALSY list, go here:
>>
>>http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
>
> -----------------------
>
> To change your mail settings or leave the C-PALSY list, go here:
>
> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
>



-- 


Kendall

An unreasonable man (but my wife says that's redundant!)

The reasonable man adapts himself to the world; the unreasonable one
persists in trying to adapt the world to himself. Therefore, all
progress depends on the unreasonable man.

-George Bernard Shaw 1856-1950

-----------------------

To change your mail settings or leave the C-PALSY list, go here:

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