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Subject:
From:
"Michael H. Collis" <[log in to unmask]>
Reply To:
Cerebral Palsy List <[log in to unmask]>
Date:
Fri, 10 Oct 2008 20:31:58 -0400
Content-Type:
text/plain
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That's true, but I was unrealistic in my career Goal, and After i got my education to be what I wanted to be, I couldn't get work being what I thought was my life calliso I had to reinvent my life at 40 and kinda figure out what I was going to do. I'm now 53 and I've figured out somewhat.  

---- Original message ----
>Date: Fri, 10 Oct 2008 14:22:26 -0600
>From: "Kendall D. Corbett" <[log in to unmask]>  
>Subject: Re: Hello/Question  
>To: [log in to unmask]
>
>Mike,
>
>Since Michael's only 5, he's probably quite a bit away from those
>conversations.  At 5, like most boys, I wanted to be a cowboy or a
>policeman, but by the time I was an early teenager, I'd settled on
>more realistic occupational goals - (doctor, teacher, attorney).  At
>5, everyone should dream, and dream big.  There's plenty of time for
>reality in the later years.  Our Voc Rehab won't even start working
>with kids with disabilities until they're in junior high or freshmen
>in high school.  Knowing that Voc. Rehab is an option though is a
>great thing!
>
>On Fri, Oct 10, 2008 at 1:46 PM, Michael H. Collis <[log in to unmask]> wrote:
>> A little heart to heart talk with Voc, Rehab. wouldn't hurt either.   As Michael grows older, he might choose a career that he physically can't do, and all the well wishers can not change that fact. :(
>>
>> ---- Original message ----
>>>Date: Fri, 10 Oct 2008 10:36:13 -0600
>>>From: "Kendall D. Corbett" <[log in to unmask]>
>>>Subject: Re: Hello/Question
>>>To: [log in to unmask]
>>>
>>>Dina,
>>>
>>>Kat's absolutely right about differences by state, so get in touch
>>>with your state human services or Medicaid office.  You might also
>>>want to start looking at a "special needs trust" for your son.  Those
>>>also vary somewhat by state so finding an attorney locally would be
>>>helpful.  There are resources for kids with disabilities in
>>>educational settings that can be helpful, and networking with parents
>>>involved in those systems could be a great help.  Id get in touch with
>>>your local school district and ask about a Parent Resource Center, or
>>>a Parent Information Center.
>>>
>>>
>>>A couple of good places to start getting information on what you and
>>>your son need to do to prepare for his future would be your state
>>>develiopmental disabilities planning council and the University Center
>>>of Excellence on Developmental Disabilities in your state.  Here are
>>>links to the national organizations for both of those, so you can find
>>>information for your state:
>>>
>>>Association of University Centers on Disability:
>>>
>>>www.aucd.org
>>>
>>>And the UCEDD directory by state:
>>>
>>>http://aucd.org/directory/directory.cfm?program=UCEDD
>>>
>>>National Association of Councils on Developmental Disabilities
>>>
>>>www.nacdd.org
>>>
>>>and the member council directory
>>>
>>>http://www.nacdd.org/pages/councils.htm
>>>
>>>
>>>Another source that has links to a lot of really valuable information is:
>>>
>>>National Information Center for Children and Youth with Disabilities
>>>P.O. Box 1492
>>>Washington, DC 20013-1492
>>>1-800-695-0285 (Voice/TT)
>>>(202) 884-8200 (Voice/TT)
>>>
>>>http://www.nichcy.org/Pages/Home.aspx
>>>
>>>On Fri, Oct 10, 2008 at 8:11 AM, Dina Koblence <[log in to unmask]> wrote:
>>>> Good morning everyone!
>>>>
>>>> I have a son, Michael, who is five years old and is diagnosed with hypotonic
>>>> quadraplegic cerebral palsy. I agree with people in this group, that there is a
>>>> lot more information on and about children with cp than that of adults. But
>>>> even so, I feel that I have to "reinvent the wheel" with my choices for Michael
>>>> all the time. Maybe because each cp is very specific or maybe because I
>>>> haven't really found the right resources, I am not sure...
>>>>
>>>> Even though he is just five, I try to plan for his financial future now. In the
>>>> process I realized that I needed to know what governmental benefits he would
>>>> be eligible for once he is 18. Right now Michael is included in our family
>>>> insurance plan. How is it be to get a regular medical insurance coverage for
>>>> him when he is 18? What does Medicaid cover? Does it cover any of the
>>>> therapy? What Social Security benefits are there for a person with CP? Is
>>>> there anything else?
>>>>
>>>> I appreciate greatly any information you could share with me.
>>>>
>>>> Thanks,
>>>> Dina Koblence
>>>>
>>>> -----------------------
>>>>
>>>> To change your mail settings or leave the C-PALSY list, go here:
>>>>
>>>> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
>>>>
>>>
>>>
>>>
>>>--
>>>
>>>
>>>Kendall
>>>
>>>An unreasonable man (but my wife says that's redundant!)
>>>
>>>The reasonable man adapts himself to the world; the unreasonable one
>>>persists in trying to adapt the world to himself. Therefore, all
>>>progress depends on the unreasonable man.
>>>
>>>-George Bernard Shaw 1856-1950
>>>
>>>-----------------------
>>>
>>>To change your mail settings or leave the C-PALSY list, go here:
>>>
>>>http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
>>
>> -----------------------
>>
>> To change your mail settings or leave the C-PALSY list, go here:
>>
>> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
>>
>
>
>
>-- 
>
>
>Kendall
>
>An unreasonable man (but my wife says that's redundant!)
>
>The reasonable man adapts himself to the world; the unreasonable one
>persists in trying to adapt the world to himself. Therefore, all
>progress depends on the unreasonable man.
>
>-George Bernard Shaw 1856-1950
>
>-----------------------
>
>To change your mail settings or leave the C-PALSY list, go here:
>
>http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy

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