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Cerebral Palsy List <[log in to unmask]>
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ken barber <[log in to unmask]>
Date:
Fri, 10 Oct 2008 17:42:39 -0700
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here in ala. it was freshman in high school. 


--- On Fri, 10/10/08, Kendall D. Corbett <[log in to unmask]> wrote:

> From: Kendall D. Corbett <[log in to unmask]>
> Subject: Re: Hello/Question
> To: [log in to unmask]
> Date: Friday, October 10, 2008, 4:22 PM
> Mike,
> 
> Since Michael's only 5, he's probably quite a bit
> away from those
> conversations.  At 5, like most boys, I wanted to be a
> cowboy or a
> policeman, but by the time I was an early teenager, I'd
> settled on
> more realistic occupational goals - (doctor, teacher,
> attorney).  At
> 5, everyone should dream, and dream big.  There's
> plenty of time for
> reality in the later years.  Our Voc Rehab won't even
> start working
> with kids with disabilities until they're in junior
> high or freshmen
> in high school.  Knowing that Voc. Rehab is an option
> though is a
> great thing!
> 
> On Fri, Oct 10, 2008 at 1:46 PM, Michael H. Collis
> <[log in to unmask]> wrote:
> > A little heart to heart talk with Voc, Rehab.
> wouldn't hurt either.   As Michael grows older, he might
> choose a career that he physically can't do, and all the
> well wishers can not change that fact. :(
> >
> > ---- Original message ----
> >>Date: Fri, 10 Oct 2008 10:36:13 -0600
> >>From: "Kendall D. Corbett"
> <[log in to unmask]>
> >>Subject: Re: Hello/Question
> >>To: [log in to unmask]
> >>
> >>Dina,
> >>
> >>Kat's absolutely right about differences by
> state, so get in touch
> >>with your state human services or Medicaid office. 
> You might also
> >>want to start looking at a "special needs
> trust" for your son.  Those
> >>also vary somewhat by state so finding an attorney
> locally would be
> >>helpful.  There are resources for kids with
> disabilities in
> >>educational settings that can be helpful, and
> networking with parents
> >>involved in those systems could be a great help. 
> Id get in touch with
> >>your local school district and ask about a Parent
> Resource Center, or
> >>a Parent Information Center.
> >>
> >>
> >>A couple of good places to start getting
> information on what you and
> >>your son need to do to prepare for his future would
> be your state
> >>develiopmental disabilities planning council and
> the University Center
> >>of Excellence on Developmental Disabilities in your
> state.  Here are
> >>links to the national organizations for both of
> those, so you can find
> >>information for your state:
> >>
> >>Association of University Centers on Disability:
> >>
> >>www.aucd.org
> >>
> >>And the UCEDD directory by state:
> >>
> >>http://aucd.org/directory/directory.cfm?program=UCEDD
> >>
> >>National Association of Councils on Developmental
> Disabilities
> >>
> >>www.nacdd.org
> >>
> >>and the member council directory
> >>
> >>http://www.nacdd.org/pages/councils.htm
> >>
> >>
> >>Another source that has links to a lot of really
> valuable information is:
> >>
> >>National Information Center for Children and Youth
> with Disabilities
> >>P.O. Box 1492
> >>Washington, DC 20013-1492
> >>1-800-695-0285 (Voice/TT)
> >>(202) 884-8200 (Voice/TT)
> >>
> >>http://www.nichcy.org/Pages/Home.aspx
> >>
> >>On Fri, Oct 10, 2008 at 8:11 AM, Dina Koblence
> <[log in to unmask]> wrote:
> >>> Good morning everyone!
> >>>
> >>> I have a son, Michael, who is five years old
> and is diagnosed with hypotonic
> >>> quadraplegic cerebral palsy. I agree with
> people in this group, that there is a
> >>> lot more information on and about children
> with cp than that of adults. But
> >>> even so, I feel that I have to "reinvent
> the wheel" with my choices for Michael
> >>> all the time. Maybe because each cp is very
> specific or maybe because I
> >>> haven't really found the right resources,
> I am not sure...
> >>>
> >>> Even though he is just five, I try to plan for
> his financial future now. In the
> >>> process I realized that I needed to know what
> governmental benefits he would
> >>> be eligible for once he is 18. Right now
> Michael is included in our family
> >>> insurance plan. How is it be to get a regular
> medical insurance coverage for
> >>> him when he is 18? What does Medicaid cover?
> Does it cover any of the
> >>> therapy? What Social Security benefits are
> there for a person with CP? Is
> >>> there anything else?
> >>>
> >>> I appreciate greatly any information you could
> share with me.
> >>>
> >>> Thanks,
> >>> Dina Koblence
> >>>
> >>> -----------------------
> >>>
> >>> To change your mail settings or leave the
> C-PALSY list, go here:
> >>>
> >>>
> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
> >>>
> >>
> >>
> >>
> >>--
> >>
> >>
> >>Kendall
> >>
> >>An unreasonable man (but my wife says that's
> redundant!)
> >>
> >>The reasonable man adapts himself to the world; the
> unreasonable one
> >>persists in trying to adapt the world to himself.
> Therefore, all
> >>progress depends on the unreasonable man.
> >>
> >>-George Bernard Shaw 1856-1950
> >>
> >>-----------------------
> >>
> >>To change your mail settings or leave the C-PALSY
> list, go here:
> >>
> >>http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
> >
> > -----------------------
> >
> > To change your mail settings or leave the C-PALSY
> list, go here:
> >
> >
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> >
> 
> 
> 
> -- 
> 
> 
> Kendall
> 
> An unreasonable man (but my wife says that's
> redundant!)
> 
> The reasonable man adapts himself to the world; the
> unreasonable one
> persists in trying to adapt the world to himself.
> Therefore, all
> progress depends on the unreasonable man.
> 
> -George Bernard Shaw 1856-1950
> 
> -----------------------
> 
> To change your mail settings or leave the C-PALSY list, go
> here:
> 
> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy


      

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