<<Disclaimer: Verify this information before applying it to your situation.>>

It is my understanding that kidney disease is not unusual for  
patients diagnosed with Lupus.  Is this also true about Sjogren's?

I am having some scary symptoms- predominantly pain in the lower- 
middle back on both sides and abdominal pain on both sides- almost  
constant- mostly just mild and uncomfortable but occasionally  
moderate, and less frequently a sharp stabbing pain- it was first  
thought to be kidney stones.  The first time I had the pain- late  
August, I also had a bladder infection, blood in my urine and  
crystals.  But the CAT Scan was clear.   I've had problems with  
bladder infections (and a few kidney infections) my entire life.  I  
am 45 and I estimate I've had more then 60 infections - the first one  
happened at 15 years old.  When I was in my mid to late 20's they did  
lots of testing and said that I had an abnormally small bladder.

I have not been diagnosed with Lupus, but I have been diagnosed with  
Sjogren's [and CD and DH].  I do have some Lupus symptoms, but  
haven't been concerned as I understand a definitive diagnosis is  
difficult to obtain ( why worry about something I can't control) and  
too, that Sjogren's is very similar - as far as attacking internal  
organs- and so I didn't feel that it really mattered.

The rheumatologist I went too treated me really poorly at my last  
visit- only went twice- I had no bladder symptoms at the time, but  
his testing also showed blood in the urine and high WBC and he blew  
this off and said I was probably having my period ( I wasn't) and  
that a lot of people show an elevated WBC when nothing is wrong.    
HUH?   No self respecting person would go back.  It's a long story  
but basically he was insulted that I got copies of  the lab work he  
ordered to give to  my PCP.  My PCP had asked me too, not that I need  
to justify asking for a copy of my records.....anyway the whole thing  
was bizarre- his tests also showed I had Vit D deficiency....

I am wondering if there is a connection between kidney disease and  
Sjogren's? Of note, I have been having salt cravings for more than a  
year and have noticed edema- but only once or twice.   Is there  
anyone here afflicted with both and would you be willing to share  
your story?  I will share with the group or not- as you wish.

The urologist I saw today ordered a regular ultra sound, x-ray and  
another urine sample, I should have more answers next week.  He did  
not think that what I have is kidney stones.  He said it would be  
highly unlikely to get a clear CAT scan if there were kidney stones.

thank you,

Yvonne

Yaar Glass
http://www.yaarglass.com/


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