Your story reminds me of being in boarding school while I finished my ed
years in the Uk.
The doc at school thought I should do physio. That wasn't the problem. It
was the fact that instead of getting on a bus and going to physio, an
ambulance showed up. I wasn't happy. I didn't know that the NHS was
responsible for me getting from A to B.
I laugh about those years now. Yup, good old matron standing there with
that disapproving look on her face as I ranted on about being independent.
Erin
----- Original Message -----
From: "Deri James" <[log in to unmask]>
Newsgroups: bit.listserv.c-palsy
To: <[log in to unmask]>
Sent: Saturday, April 05, 2008 5:03 PM
Subject: Re: Hello, I'm new here
> On Saturday 05 April 2008 02:58:51 Mary Powers wrote:
>> ps - walking makes me dizzy.? I also have flat feet.? but then I get
>> dizzy
>> a lot.? if anyone knows of an epilepsy specialist, or anything about CP
>> and
>> epilepsy (do they ever go together for anyone except me?) - I'd
>> appreciate
>> it.
>
> Hi Mary,
>
> I am a quadriplegic (sounds like something "The Who" released!!) and when
> I
> was younger I used to have "petit mal" fits, the "special school" I
> boarded
> at slapped me me onto phenobarbitol and it seemed to stop.
>
> However, as I grew older (about 15) I realised I didn't want to take this
> medication for life (stops you drinking alchohol for a start!!) so I
> started "faking" taking the tablet (we used to queue at Matrons surgery
> after
> breakfast to receive our medication, she'd pop it into our hands and we'd
> throw it down our throats - except I'd learned to hold the pill in the
> crack
> of my palm so it didn't actually go into my mouth). I'd take the pill back
> to
> the dormitory and toss it in the back of my chest of drawers.
>
> This went on for about 18 months but one day this cache was discovered by
> my
> House Father, they discovered about 400 pills. I expected to get a right
> good
> telling off, instead the staff were really nice to me but it seemed at
> least
> one of them was always with me!!
>
> The next day a new doctor turned up at the school and I was asked to go to
> meet him. He was very nice, asking me if I was happy at the school? Did I
> get
> on well with the staff? How many pills did I plan to collect? Was I going
> to
> put the pills in something - like the breakfast tea urn that everyone
> drank
> from?
>
> It was during these questions that I realised he was not concerned about
> whether I'd increased the risk of having an epileptic fit, but what,
> exactly,
> I planned to do with my drugs cache when I got "enough"!! This was no
> medical
> doc, he was a psychologist.
>
> I hadn't realised that I had sufficient barbiturate in my stash to put the
> whole school to sleep (possibly forever!!). Fortunately I convinced him
> that
> my actions were simply to prove that I no longer needed the
> phenobarbitone,
> not something darker, otherwise I may have been institutionalised for
> rather
> longer than just my school years!!
>
> So, after rather a long ramble, yes, CP & epilepsy are sometimes together,
> but
> I haven't had a fit for over 40 years, and my dizziness these days is more
> due to alchohol than epilepsy!!
>
> Cheers
>
> Deri
>
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