Really? I was under the impression seizures were very common in CP... but I
have never known of another child with CP. This list serv is the first CP
support group I have every joined. Maybe I have been misinformed. Thank you
for that.
----- Original Message -----
From: "Michael H. Collis" <[log in to unmask]>
Newsgroups: bit.listserv.c-palsy
To: <[log in to unmask]>
Sent: Monday, May 31, 2010 6:51 PM
Subject: Re: Seizure???
> You will have to go to a neurologist in order to get it diagnosed.
> Seizures
> are not too common with folks that have C.P. that I'm aware of.
>
> -----Original Message-----
> From: Cerebral Palsy List [mailto:[log in to unmask]] On Behalf Of
> Jeri LaRae Mercer
> Sent: Monday, May 31, 2010 8:58 PM
> To: [log in to unmask]
> Subject: Seizure???
>
> Hi,
> Can someone possibly tell me what type of seizure this could be if a
> seizure
> at all?
>
> My daughter has a history with a seizure disorder that includes
> generalized
> tonic-clonic and myoclonic seizures with a history of status epilepticus,
> so
> I can positive identify those two types, but a few years ago she has begun
> to have a type of seizure that is totally new for her and then just
> yesterday she had some twitching with shakiness that seems new as well,
> but
> resembles the new type that she started having a few years ago, but we are
> not sure if the twitching/shakiness we saw yesterday is actually seizure
> activity and if it is, what could it be?
>
> I'll start with the new type she started having a few years ago: She
> actually remains CONSCIOUS while her left leg and left arm "jolt" every
> couple of seconds (not continuous convulsing as in a tonic-clonic) and she
> whines when the jolts occur as if it's uncomfortable, or maybe she's just
> frustrated that she can't control it- not sure. They are obvious
> involuntary
> muscle jerks and every keep her from being able to sit up or grasp an
> object
> (i.e. her toy or book) and yet she is conscious enough for this inability
> to
> grasp her items due to the muscle jerks as she persistently reaches for
> her
> items. She even looks at her arm when it jerks as if she is confused as to
> why it keeps doing that. These episodes have lasted up to ten minutes and
> occasionally during that 10 minute episode she does appear to generalize
> briefly (literally about one second) as her head arches back as it does
> with
> the tonic-clonic and myoclonics and her eyes roll back too, but then she
> is
> immediately conscious again and back to whining about her uncontrollable
> jerking in her arm/leg... these seizures have happened numerous times over
> the past few years, but not very often at all and they have never lasted
> long enough for the medics to actually witness them. We took a video of
> one,
> but the video was terrible and difficult for her neuro to really tell and
> since then we've only seen them when caught off guard and didn't have the
> video camera ready. I researched seizures on the web and could only match
> its description to "simple partial" but I am not positive. Anyone ever see
> this type of seizure? She never had one like this until age 17.
>
> The thing we saw yesterday was similar, but we're not sure if it's the
> same:
> She was sitting in the back seat of the car and kept getting frustrated
> because she kept dropping her book when we noticed her left arm was
> jerking.
> It was obvious involuntary jerking (not continuous convulsing as in a
> tonic-clonic) and her hand was very trembly/shaky. She didn't notice (or
> pay
> attention) the jerking in her arm this time and it didn't seem as
> pronounced. We couldn't tell if her leg was jerking as well, but she was
> sitting and the car was moving. She definitely didn't generalize with her
> head arched or eyes roll back this time. When we got home an hour later
> and
> handed her a glass of water her left hand was trembling so bad she had
> very
> little controll and the water was spilling like crazy, soI had to hold the
> glass for her to drink from it. When I held her hand off and on I noticed
> it
> seemed a little shaky, but it was faintly shaky and not so obvious, so I
> wasn't really sure what to think. I am confused as to what this could be.
> Does anyone have any idea??? I would rather hear that it is seizure
> activity
> than something worse to be honest.
> If you have any ideas I'd be relieved to hear back.
> Thank you,
> LaRae
>
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