You will have to go to a neurologist in order to get it diagnosed. Seizures
are not too common with folks that have C.P. that I'm aware of.
-----Original Message-----
From: Cerebral Palsy List [mailto:[log in to unmask]] On Behalf Of
Jeri LaRae Mercer
Sent: Monday, May 31, 2010 8:58 PM
To: [log in to unmask]
Subject: Seizure???
Hi,
Can someone possibly tell me what type of seizure this could be if a seizure
at all?
My daughter has a history with a seizure disorder that includes generalized
tonic-clonic and myoclonic seizures with a history of status epilepticus, so
I can positive identify those two types, but a few years ago she has begun
to have a type of seizure that is totally new for her and then just
yesterday she had some twitching with shakiness that seems new as well, but
resembles the new type that she started having a few years ago, but we are
not sure if the twitching/shakiness we saw yesterday is actually seizure
activity and if it is, what could it be?
I'll start with the new type she started having a few years ago: She
actually remains CONSCIOUS while her left leg and left arm "jolt" every
couple of seconds (not continuous convulsing as in a tonic-clonic) and she
whines when the jolts occur as if it's uncomfortable, or maybe she's just
frustrated that she can't control it- not sure. They are obvious involuntary
muscle jerks and every keep her from being able to sit up or grasp an object
(i.e. her toy or book) and yet she is conscious enough for this inability to
grasp her items due to the muscle jerks as she persistently reaches for her
items. She even looks at her arm when it jerks as if she is confused as to
why it keeps doing that. These episodes have lasted up to ten minutes and
occasionally during that 10 minute episode she does appear to generalize
briefly (literally about one second) as her head arches back as it does with
the tonic-clonic and myoclonics and her eyes roll back too, but then she is
immediately conscious again and back to whining about her uncontrollable
jerking in her arm/leg... these seizures have happened numerous times over
the past few years, but not very often at all and they have never lasted
long enough for the medics to actually witness them. We took a video of one,
but the video was terrible and difficult for her neuro to really tell and
since then we've only seen them when caught off guard and didn't have the
video camera ready. I researched seizures on the web and could only match
its description to "simple partial" but I am not positive. Anyone ever see
this type of seizure? She never had one like this until age 17.
The thing we saw yesterday was similar, but we're not sure if it's the same:
She was sitting in the back seat of the car and kept getting frustrated
because she kept dropping her book when we noticed her left arm was jerking.
It was obvious involuntary jerking (not continuous convulsing as in a
tonic-clonic) and her hand was very trembly/shaky. She didn't notice (or pay
attention) the jerking in her arm this time and it didn't seem as
pronounced. We couldn't tell if her leg was jerking as well, but she was
sitting and the car was moving. She definitely didn't generalize with her
head arched or eyes roll back this time. When we got home an hour later and
handed her a glass of water her left hand was trembling so bad she had very
little controll and the water was spilling like crazy, soI had to hold the
glass for her to drink from it. When I held her hand off and on I noticed it
seemed a little shaky, but it was faintly shaky and not so obvious, so I
wasn't really sure what to think. I am confused as to what this could be.
Does anyone have any idea??? I would rather hear that it is seizure activity
than something worse to be honest.
If you have any ideas I'd be relieved to hear back.
Thank you,
LaRae
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