I love my Lyrica and find it helps a lot better than cymbalta without the
side effects, I don't have CP nor diabetic neuropathy (still trying to find
out the reason for my neuropathy).   The aneurysm sounds extremely painful.



Beth t.

> -----Original Message-----
> From: Cerebral Palsy List [mailto:[log in to unmask]] 
> On Behalf Of Cleveland, Kyle E.
> Sent: Friday, September 28, 2007 9:57 PM
> To: [log in to unmask]
> Subject: Re: Hello again
> 
> OK, so how's everyone doing CP-wise?  As for me, I've found 
> Botox.  Anyo= ne else have any experience with this stuff?  
> It's been a godsend for=  me.  I get shot about every 3 
> months or so and a heck of a lot of stret= ching in between.  
> I guess we're going to start using some drug called=  
> "Myoblock" next time around.  Apparently the body doesn't 
> develop the=  same accomodation to the botulin toxin.  I also 
> found a kick-butt ortho= tist in town that built an 
> incredible AFO for me--makes a night and day=  difference in my gait.
> =20
> Last year I had an aneurysm pop somewhere in my gut and came 
> pretty clos= e to going 'casters up'. The net result was that 
> I lost about 30 pounds=  in the hospital and have managed to 
> keep it off.  That helps enormously= .  Every pound you lose 
> is one pound less to carry on a battered old fra= me.
> =20
> I've also found a new med called Lyrica (pregabalin).  The 
> stuff origina= lly was prescribed for folks with diabetic 
> nerve pain, but they are disc= overing it helps with a host 
> of CNS issues.  My pain load has dropped=  remarkably.  
> Lyrica and Zanaflex (tizanidine) at night are the only two=  
> CP meds I'm taking now.  I'm doing better than I have been in years.
> =20
> Enough about me, what about everyone else?  Bring me up to 
> date on every= thing.
> =20
> Kyle

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