i have been getting botox in the neck to keep pressure
off the 2 herniated disk i have in the cyrvical area. 
it has helped a good bit. at this time i do not know
how my new insurance in this area will handle that
aspect of medical care. 
about every 3 months is my time too. i hope they'll
keep letting me go to Emory for that. had a great
neuro with a motion disorder clince there who is quite
well know for dystonia treatment.  
 

--- "Cleveland, Kyle E."
<[log in to unmask]> wrote:

> OK, so how's everyone doing CP-wise?  As for me,
> I've found Botox.  Anyone else have any experience
> with this stuff?  It's been a godsend for me.  I get
> shot about every 3 months or so and a heck of a lot
> of stretching in between.  I guess we're going to
> start using some drug called "Myoblock" next time
> around.  Apparently the body doesn't develop the
> same accomodation to the botulin toxin.  I also
> found a kick-butt orthotist in town that built an
> incredible AFO for me--makes a night and day
> difference in my gait.
>  
> Last year I had an aneurysm pop somewhere in my gut
> and came pretty close to going 'casters up'. The net
> result was that I lost about 30 pounds in the
> hospital and have managed to keep it off.  That
> helps enormously.  Every pound you lose is one pound
> less to carry on a battered old frame.
>  
> I've also found a new med called Lyrica
> (pregabalin).  The stuff originally was prescribed
> for folks with diabetic nerve pain, but they are
> discovering it helps with a host of CNS issues.  My
> pain load has dropped remarkably.  Lyrica and
> Zanaflex (tizanidine) at night are the only two CP
> meds I'm taking now.  I'm doing better than I have
> been in years.
>  
> Enough about me, what about everyone else?  Bring me
> up to date on everything.
>  
> Kyle
> 
> ________________________________
> 
> 
> ---- Original message ----
> >Date: Fri, 28 Sep 2007 15:02:18 -0700
> >From: ken barber <[log in to unmask]> 
> >Subject: Re: Hello again 
> >To: [log in to unmask]
> >
> >we occasionally talk about cp if we have to.
> 
> 
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