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Subject:
From:
ken barber <[log in to unmask]>
Reply To:
Cerebral Palsy List <[log in to unmask]>
Date:
Sat, 29 Sep 2007 09:45:26 -0700
Content-Type:
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also advances from the space program have helped. lord
know how much i love velcro. 

yes, the clinic at emory is something not widely
available in other places. that is why i want to be
able to continue to drive over there to it for botox. 

bad news maybe for you or maybe not. the same doc at
the clinic says "no surgery for the things in the
neck" becouse the dystonia in the neck and sholder
area would give a lot of post op complications and
probably no good recovery from the surgery short of an
induced coma to keep the muscles quite long enough for
the healing to take pace then lots of theropy to get
over the inactivity. your results might be different.
my muscles pull in differn directions during spasms.  


I
> also had an MRI to see if there were any underlying
> problems in the neck
> causing the arm and neck pain.  There were:
> arthritis in 3 vertebra, two
> disks bulging, one disk flattened, and a partridge
> in a pear tree.  So we'll
> see if the botox and PT and OT can delay surgery a
> little bit.  I was
> talking to my boss last week, and said I'd
> eventually make some orthopedic
> surgeon very happy and pay for a new Lexus, or his
> kid's college
> education. Glad to hear the botox is working well
> for you for similar
> problems Ken.  No such thing as a movement disorders
> clinic in Wyoming, and
> the "adult" CP Clinic in Denver will only see
> patients between 18 an 30.
> 
> Great thing is that the senior partner in the
> neurology practice Janet and I
> see did his fellowship in movement disorders, and
> the junior partner is
> really up on neuro-anatomy and nerve pain.  We've
> actually been able to put
> together a virtual multi-disciplinary team, with
> docs and therapists from
> within about a 200 mile radius.
> 
> 
> On 9/29/07, Michael H. Collis <[log in to unmask]>
> wrote:
> >
> > You got that right Kyle.  I can't imagine what
> life would be like without
> > powerchairs, hearing aids, cochlear implants, and
> other techie
> > wonders.  Heck, most of us would probably be
> institutionalized if we made it
> > out of childhood, or worse.
> >
> > ---- Original message ----
> > >Date: Sat, 29 Sep 2007 08:58:06 -0400
> > >From: "Cleveland, Kyle E."
> <[log in to unmask]>
> > >Subject: Re: Hello again
> > >To: [log in to unmask]
> > >
> > >Yeah, but Dylan's songwriting...WOW!  I just
> heard a CD of a band called
> > "Opie Gone Bad" that covered some Dylan tunes. 
> Smashing!
> > >
> > >Wonderful to 'hear' about your implant Kat. 
> Ain't technology
> > wonderful?  Can you imagine what life would be
> like for us gimps a hundred
> > years back?  Most of us probably wouldn't live
> until adulthood--if we nade
> > it past birth!
> > >How has the implant affected your balance?
> > >
> > >Kyle
> >
> > -----------------------
> >
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> >
>
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> >
> 
> 
> 
> -- 
> 
> 
> Kendall
> 
> An unreasonable man (but my wife says that's
> redundant!)
> 
> The reasonable man adapts himself to the world; the
> unreasonable one
> persists in trying to adapt the world to himself.
> Therefore, all progress
> depends on the unreasonable man.
> 
> -George Bernard Shaw 1856-1950
> 
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> 
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