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Date: | Thu, 11 Jun 2009 16:28:47 +0000 |
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Meir,
I wonder if the family has tried more traditional treatments for dystonia.
This comes across as a late onset form of dystonia, but it seems to me that
drugs like baclofen (oral or ITB) might be helpful. It looks like they're
in South Florida, and one of the best research centers on childhood
movement disorders is at the University of Alabama/Birmingham. If it truly
progresses for five years and then stops, it seems like a fairly
straightforward research problem to find out what's stopping the production
of the neurotransmitter inhibiting the dystonia, or what's causing the over
production of the neurotransmitter causing the dystonia, and what then
causes the problem to reverse itself. This could potentially impact people
with "traditional" dystonic (athetoid) or mixed CP.
Kendall
On Jun 11, 2009 8:28am, Meir Weiss <[log in to unmask]> wrote:
> Family pushes for cure 4:31
> 11-year-old Tyler Staab has a somewhat unknown disorder that causes
> uncontrollable muscle spasms. It's called dystonia. Scientists are working
> on finding its cause and a cure. The Staab family is leading this effort.
> ? CNN.com
> Source: CNN | Added June 10, 2009
> Click the following to access the sent link:
> http://images.clickability.com/partners/3000/etIcon.gif> Family
> pushes for cure
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