Dina,
Kat's absolutely right about differences by state, so get in touch
with your state human services or Medicaid office. You might also
want to start looking at a "special needs trust" for your son. Those
also vary somewhat by state so finding an attorney locally would be
helpful. There are resources for kids with disabilities in
educational settings that can be helpful, and networking with parents
involved in those systems could be a great help. Id get in touch with
your local school district and ask about a Parent Resource Center, or
a Parent Information Center.
A couple of good places to start getting information on what you and
your son need to do to prepare for his future would be your state
develiopmental disabilities planning council and the University Center
of Excellence on Developmental Disabilities in your state. Here are
links to the national organizations for both of those, so you can find
information for your state:
Association of University Centers on Disability:
www.aucd.org
And the UCEDD directory by state:
http://aucd.org/directory/directory.cfm?program=UCEDD
National Association of Councils on Developmental Disabilities
www.nacdd.org
and the member council directory
http://www.nacdd.org/pages/councils.htm
Another source that has links to a lot of really valuable information is:
National Information Center for Children and Youth with Disabilities
P.O. Box 1492
Washington, DC 20013-1492
1-800-695-0285 (Voice/TT)
(202) 884-8200 (Voice/TT)
http://www.nichcy.org/Pages/Home.aspx
On Fri, Oct 10, 2008 at 8:11 AM, Dina Koblence <[log in to unmask]> wrote:
> Good morning everyone!
>
> I have a son, Michael, who is five years old and is diagnosed with hypotonic
> quadraplegic cerebral palsy. I agree with people in this group, that there is a
> lot more information on and about children with cp than that of adults. But
> even so, I feel that I have to "reinvent the wheel" with my choices for Michael
> all the time. Maybe because each cp is very specific or maybe because I
> haven't really found the right resources, I am not sure...
>
> Even though he is just five, I try to plan for his financial future now. In the
> process I realized that I needed to know what governmental benefits he would
> be eligible for once he is 18. Right now Michael is included in our family
> insurance plan. How is it be to get a regular medical insurance coverage for
> him when he is 18? What does Medicaid cover? Does it cover any of the
> therapy? What Social Security benefits are there for a person with CP? Is
> there anything else?
>
> I appreciate greatly any information you could share with me.
>
> Thanks,
> Dina Koblence
>
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--
Kendall
An unreasonable man (but my wife says that's redundant!)
The reasonable man adapts himself to the world; the unreasonable one
persists in trying to adapt the world to himself. Therefore, all
progress depends on the unreasonable man.
-George Bernard Shaw 1856-1950
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