I'm not Denise, but you make good points. I'm on oral baclofen, and spent
the last week in Spokane, walking with my crutches most of the time, and
had to take a 20 mg baclofen and a Tylenol 3 every 6 hours just to
FUNCTION, and THIS week, I'm in so much pain I can hardly stand it. *sigh*
Something tells me I should have NOT walked. I haven't seriously done any
walking for about 10 years, and THIS is the reason why, my body tells me.
*sigh*

I go in for an eval for the pump on Monday. :) I'll let you know how it
goes.

Dana Marshall
[log in to unmask]
http://www.geocities.com/Athens/Styx/5326

*********** REPLY SEPARATOR ***********

On 5/7/99, at 11:10 AM, I. STEPHEN MARGOLIS wrote:

>Denise,
>
>A number of people on the CP Dystonia list have pumps, are doing one form
or
>another of Baclofen.  They may be helpful.  Sarah Jayne Davies runs the
>list, walks the walk.
>
>        <[log in to unmask]>
>
>Is there a "rush" to "cure" from undesignated sources going on.  Or are
you
>at another stage of agony with your pain.  Whichever.  Take your time.  I
>know that pain and muscle lock erodes living, the quality and range of
>activities.  Be certain before you let the Doc's tamper.  They make their
>$$$ no matter the outcome.  You live/suffer the consequences.
>
>Why not oral Baclofen first, then the pump if need be?  Every technology
has
>drawbacks.
>
>I'll send more info/urls over the weekend.  Meantime start at:
>
>        <http://maelstrom.stjohns.edu/archives/c-palsy.html>
>
>Hugs,
>
>ISM
>
>Date: Thu, 6 May 1999 11:15:08 -0400
>From: Kyle E Cleveland <[log in to unmask]>
>Subject: Re: Help-info needed (Pump)
>Denise D. Goodman wrote:
>I just saw the
>> doctor yesterday- a neurologist and he suggested in three weeks time I
>meet
>> with an neuro surgen to have one installed.
>>
>Thankss-
>> Denise.
>Denise,
>You tried oral Baclofen yet? Just curious.
>-Kyle
>------------------------------