Denise,

A number of people on the CP Dystonia list have pumps, are doing one form or
another of Baclofen.  They may be helpful.  Sarah Jayne Davies runs the
list, walks the walk.

        <[log in to unmask]>

Is there a "rush" to "cure" from undesignated sources going on.  Or are you
at another stage of agony with your pain.  Whichever.  Take your time.  I
know that pain and muscle lock erodes living, the quality and range of
activities.  Be certain before you let the Doc's tamper.  They make their
$$$ no matter the outcome.  You live/suffer the consequences.

Why not oral Baclofen first, then the pump if need be?  Every technology has
drawbacks.

I'll send more info/urls over the weekend.  Meantime start at:

        <http://maelstrom.stjohns.edu/archives/c-palsy.html>

Hugs,

ISM

Date: Thu, 6 May 1999 11:15:08 -0400
From: Kyle E Cleveland <[log in to unmask]>
Subject: Re: Help-info needed (Pump)
Denise D. Goodman wrote:
I just saw the
> doctor yesterday- a neurologist and he suggested in three weeks time I
meet
> with an neuro surgen to have one installed.
>
Thankss-
> Denise.
Denise,
You tried oral Baclofen yet? Just curious.
-Kyle
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