Thank you so much for responding to me.I would love to grab lunch one day. I live about 25 minutes from Towson so it is not to far.I am just now starting to explain to Johnathan about CP.He knows he has it but does not know exactly what it is yet.There is nothing worng with his cognitive skills.As a matter of fact he will be starting school with his older brother in September.He will eventually require assitive technology.And i encourage everyday when we do excerises and tell him he will walk. They have told us they think he will one but it might be awhile.But Thank You for emailing back and sharing with me.It is very encouraging.And Congratulations on ALL of your accomplishments.Great Work.And good luck with everything.
Jennifer
--- On Sun, 3/15/09, Linda Macaulay <[log in to unmask]> wrote:
From: Linda Macaulay <[log in to unmask]>
Subject: Re: Hello
To: [log in to unmask]
Date: Sunday, March 15, 2009, 3:50 PM
Welcome Jennifer! I'm Linda, 36 with mild/moderate spastic diplegia CP. I actually am working on my doctorate at Towson in MD and work there part-time. If you are close to there and ever want to grab lunch while I am on campus, let me know. (I live in PA, though, and am only down in MD 2x a week).
Now I certainly haven't dealt with being immobile, but I can tell you I recall very well when I finally figured out I was different than the other kids when I was in 7th grade. I went through about 2 weeks of self-pity and then realized I better get over it because all the crying in the world wasn't going to change who I was. I certainly credit my "go get 'em" attitude to my parents who were there to encourage me. They taught me to excel at my strengths and not focus on what I couldn't do. (Thus why I ended up being an elementary teacher and now college professor -- learning is definitely my thing!) So, my best advice is be there for him, listen to his concerns, don't make false promises, and encourage him to focus his energies on something he can do. Oh, and unless he has some cognitive deficits as well, don't think he is too young to get it. I have worked with kids that young and they can comprehend that they can't do things like other
kids do...you just have to keep the language direct and simple.
Linda Macaulay
On Mar 15, 2009, at 3:09 PM, Jennifer Hoffman wrote:
> Hi my name is Jennifer and I have a 5 year old little boy named Johnathan who
> has CP.I am looking for support groups and people who understand what I am
> going through with him.He is im mobile and is now realizing he wants to be like
> the other children and walk and play sports and this is a very tough time for
> both of us.So I have been on the computer most of the day today looking for
> support groups.We live in Maryland.
> Thank You,
> Jennifer
>
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