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Thank you all so very much for your sharing your thoughts and
experiences...they are invaluable!
My daughter has been off Caltrate (and on Oscal) since Tuesday - the
latter is specifically labeled gluten free and has no suspicious
ingredients. I think she may be starting to feel a little better -
still nauseous but her energy is returning and she is no longer
feeling tingly or cranky. I cannot yet be sure if the issue was
Çaltrate or something else as she has been eating only rice with
homemade chicken broth this week and little tapioca bread with cheese
at lunch. No fruits, veggies, soy or eggs...but my fingers are
crossed that it was the Çaltrate - I will post if she continues to
improve when we add the other foods back so that Caltrate is then the
primary variable.
Here are some of the responses I received...thanks again to everyone!
Kim in PA
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- Hi, we went through something similar to this with my then 6 year
old, further tests (colonoscopy) showed he had Crohn's. Diane
- What I do is break down my diet; taking everything that *might* be
a problem and removing it completely. Then when I finally feel
better, I've learned what the problem is. I imagine that will be a
problem with an 11 year old (you can't watch what she does at
school), but anyway that's what I do.
Couple of other things:
Are you sure she's not cheating? It's easy at that age to think
you're invincible. Also, as one gets closer to teenager-hood,
there's sometimes a desire to test boundaries. I used to smoke
cigarettes. But do you think I told my mother that?!
Finally, you might ask the doctor if she can be allowed to go on
Forteo for her osteoporosis. I talked my doctor into it by telling
him that I didn't want to risk getting sick from any of the osteo
drugs that you take by-mouth.
- Does your daughter have a reaction to casein a common protein in
dairy? Many celiac patients do have a similar reaction to it. 2
possible reasons, I understand that the molecular structure of casein
is very similar to gluten. Also the villi make the enzyme for dairy
on the tip of the villi. If the villi are still damaged then she may
not be able to digest dairy. I do have a gassy and constipating
reaction to caltrate as well, apparently unable to handle the
calcium. Jess
- Your daughter may have become intolerant to another food, which you
and she are not aware of, or possibly several other foods. That is
always a fun thing to track down. People on this list will tell you
to keep a food diary, but the only way I can ever determine this for
myself is to submit to some food allergy testing (NOT traditional
allergy testing, that is worthless for intolerances) but something
like the RAST and/or the ALCAT. Btw I also did not do so well with
Caltrate; the starch is probably cornstarch, which I am reactive to,
so I stopped taking Caltrate and felt better after not taking it.
Good luck with getting to the bottom of this puzzle, such a difficult
burden, esp. as a child......
- Have you thought of checking for yeast candida??, I believe that is
what it is called. I have a yeast problem and also check on the milk
protein...Casein.
My symptoms from the three are so close that often it is hard to tell
what is from what.
Casein protein from milk causes the severe pains in muscles and
joints. Often I feel as if I am walking on bare bone. My joints will
feel as if I have severe arthritis.
Just something to check on.
Keep in mind that flour hangs in the air for 24 hours after being
used. So if you have some form of it (like cake mix, etc.) or go
places where it is a huge staple product and they don't have vents
above the work place, even if she is eating gluten-free, she can
still get sick. I do!!! It is tried and tested, first intentionally
to see and now always unintentionally.
I will keep her in my prayers. God Bless. Kay White Missouri
* Please remember some posters may be WHEAT-FREE, but not GLUTEN-FREE *
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