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Hi List Mates,
I truly apologize for getting this summary out so late.  I got sicker  
before getting better and also have a son with celiac and many severe  
food allergies, so I'm now back on my feet and ready to fill you in.   
First off, the pain was coming from a contamination.  I bought the  
regular kind of Van's blueberry waffles...had been eating them 3-4  
mornings a week for about 6 weeks and getting so ill.  I was triple  
checking everything and going crazy and was scared.  We have a GF  
house, RARELY go out to dinner and take the disease and being GF very  
seriously, and yet this still happened to a diligent family.  Lesson  
being...we're human, we error and we have to be life long  
detectives!  I believe the boxes of wheat waffles were behind the  
gluten free ones in the store and I just grabbed a bunch and ended up  
with wheat.  The boxes look very similar.
It was a shocking find, but am thankful I found the culprit to the  
colorectal pain and put an end to  feeling like I was nearing the  
other side again (last year I nearly died being contaminated from  
flonase and clariten...I was still in the learning phase).
I got so many wonderful and interesting responses.
It seems that this type of pain is rather common among people with  
celiac, and happens during a contamination, or happened a lot before  
being dx'd.
Several expressed frustrations with dr.'s having no idea what this is  
and being scared it was cancer, or something else dangerous.
No one seems to know the route of the pain or why it happens.  There  
must be a weak area, that responds negatively to the inflammatory  
response that happens with a gluten contamination.
People talked about how no pain meds helped, how the pain had  
debilitated them and kept them from sleeping (all of which is true,  
and I can relate to).
As soon as I discovered the waffles, I started recovery...it took  
several days, each day felt better and better, and finally no  
colorectal/sacral pain!!!! I started to put back on weight...get my  
stamina up and recover.
I did have a few rough days a week or so later...only to realize my  
glutenated brain forgot to toss the butter and jelly from when I used  
the waffles.
I did scrub my toaster rack and crumb tray with brillo & put it  
through the d/w and have been fine ever since.
Yet another crazy thing that gluten can due to our bodies.
Thank you for your responses.  It saved me from going under any  
unnecessary probing and  testing and  your responses convinced me it  
was gluten and made me look that much harder for the culprit.
Blessings,
Sherri in NJ
"the healing mom.com"

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