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Date: | Tue, 2 Jul 2002 03:26:54 EDT |
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My hypothyroid stuff started when I was ten. By the time TSH numbers became
the rage with doctors who can't think for themselves, my TSH was around
.002-.004. It would go down even when the meds were decreased to the point
that I was almost non-functioning (and a bunch of other hypo symptoms).
Before they started monkeying around with my dosage, my regular and free T4
and T3 were all mid-range. But they could not leave well enough alone.
Another family member does not get TSH readings either. I won't go through
the litany of what we have gone through with her because of the decreased
dosage -- because I am so angry at the damage and everything else that was
done to her.
If there are enough of us that are seriously hypothyroid yet have essentially
"O" TSH readings, is there any way we can pressure thyroid researchers to
take a look at us and figure out possible causes? I know -- we have an
"orphaned disease." The cure doesn't make money but making us sick does make
money.
(My other musing or wild fantasy is about a class action law suit by a
collection of people who have been harmed by [or are survivors of someone who
died because of] reliance on TSH while ignoring other tests and actual
symptoms. But how do we fight "standard operating procedures.")
Just late night musings.
SloMoPeg
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