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I need some help/reassurance for my son who was diagnosed with celiac 
in July.  He's 13.

Despite following the gluten free diet since then, he's not 
improving.  He still vomits frequently, has terrible reflux and 
intermittent cramping abdominal pain.  Medications do not seem to 
relieve these symptoms.  He sleeps poorly, mainly due to the 
reflux/throat pain.

I just had him in the hospital for 48 hrs, but noting showed up in 
his lab, or the gastric emptying study, so the doc concludes it's all 
still just from the celiac disease.  (tTg still pending)

Do any of you have experience with any of the pediatric celiac 
clinics. I understand Mayo, Univ of Chicago and others are 
available.  Would it be worth our time, and the travel expenses, or 
do we just wait this out?

Thanks!

Lynn

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