i'd be happy to just have doctors look past the cp and
like conditions and make a diagnosis of other health
problems. then we would not have to go to and pay 4
differend doctors before one will actually diagnose
and treat the non-cp condition.
--- Linda Walker <[log in to unmask]> wrote:
> One of the reasons I don't post often
> although I read the
> list is because I don't have cp and I don't want to
> offend anyone. I
> love the list and think it's a great group of
> people. I have the same
> politics as most of you. I don't agree with the
> Republicans on the
> list for sure. People are outspoken on this list,
> one of the things I
> like the best. Our government needs to take care of
> the aging, infirm, etc.
> I know of Lynette's work and she is doing
> as much as she can
> to improve the quality of life for people with
> physical challenges
> (Is that appropriate language, I don't know?). At
> any rate the
> organization she works for is attempting to get more
> things covered
> by insurance and this can only help.
> Maybe a discussion of useful language and
> terminology is in order..
> Talk about offensive - a woman on the
> street saw Case
> walking and gave him a dollar asking what happened
> to him. He just
> looks at her and says I have cp and I was born this
> way. He is too
> young to be offended by that but I was.
>
> All the best,
>
> Linda
>
> At 03:51 PM 3/13/2006, you wrote:
> >Thanks, Kendall, for amplifying what I was trying
> to say. I can see
> >the need for such sigs on a parents' list, but
> here, where most of us
> >are the CPs, I feel it can be a bit degrading. I
> hate having a label
> >slapped on me, and I think such sigs aren't really
> appropriate here.
> >I see it rather like being in hospital and hearing
> a doctor refer to
> >you as "the broken leg in Room Four-oh-five." (and
> yes, that did
> >happen to me, and I was most annoyed at the time!).
> >
> >Now, that is not to say that I'm going to make a
> rule and enforce it;
> >that'd be silly. I'm just voicing my opinion.
> >
> >Kat
> >
> >On 13 Mar 2006, at 14:28, Kendall David Corbett
> wrote:
> >
> > > I belong to another list for people with
> hydrocephalus, and there's a
> > > mix of people with the condition and parents of
> kids with hydro, and
> > > most people include a brief descriptor of why
> they're on the list in
> > > their siglines. I think it's kind of nice,
> because as new people
> > > join,
> > > it's kind of like a built in introduction to
> them. As folks stay
> > > on the
> > > list, they get to know us as individuals, and
> the sigline
> > > descriptor is
> > > not as necessary.
> > >
> > > I see your point though, Kat; it's kind of like
> people are still
> > > meeting
> > > our (or a child's) disability first. I just
> reread my sigline for
> > > C-Palsy, and it doesn't mention Janet's or my CP
> at all.
> > >
> > > Kendall
> > >
> > > An unreasonable man (but my wife says that's
> redundant!)
> > >
> > > The reasonable man adapts himself to the world;
> the unreasonable one
> > > persists in trying to adapt the world to
> himself. Therefore, all
> > > progress depends on the unreasonable man.
> > >
> > > -George Bernard Shaw 1856-1950
> > >
> > > -----Original Message-----
> > > From: [log in to unmask]
> [mailto:[log in to unmask]]
> > > Sent: Monday, March 13, 2006 11:59 AM
> > > To: [log in to unmask]
> > > Subject: Re: New to list - intensive suit
> therapy - hand surgery?
> > >
> > > What kind of surgery?
> > >
> > > And as an aside, what's with the labels all the
> parents of CPs put in
> > > their
> > > sigs? I know y'all have your sigs on the
> parents' lists, but
> > > frankly I
> > > find those a wee bit offensive. Just my
> tuppence.
> > >
> > > Kat
> > >
> > > Original Message:
> > > -----------------
> > > From: lynette smilelaughgiggle
> [log in to unmask]
> > > Date: Mon, 13 Mar 2006 12:44:03 -0600
> > > To: [log in to unmask]
> > > Subject: Re: New to list - intensive suit
> therapy - hand surgery?
> > >
> > >
> > > Hi All,
> > >
> > > My son has upper body spasticity and we are
> looking at surgery on his
> > > hands.
> > > Has anyone experienced this with their child?
> Cody has a baclofen
> > > pump,
> > > got us through puberty....still a never ending
> battle.
> > >
> > > Blessings,
> > > Lynette LaScala, mom to Cody (post near
> drowning,CP)
> > >
> > >
> > >
>
--------------------------------------------------------------------
> > > mail2web - Check your email from the web at
> > > http://mail2web.com/ .
>
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