Lynnette,
Have you looked into getting cody some feldenkrais lessons? I have had huge
improvements with my hands and feet. Before I began feldenkrais lessons my
hands and feet were very tight and spastic, so before your son goes the
surgery route, I hope you will look into the feldenkrais method.  

Sincerely,
Mag 

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> [Original Message]
> From: Linda Walker <[log in to unmask]>
> To: <[log in to unmask]>
> Date: 3/14/2006 4:35:04 PM
> Subject: Re: label/hand surgery/pump
>
> I am also sometimes too blunt, not even saying you were in that 
> instance though. I just really appreciate it that people can speak 
> their minds here.
>
> At 01:26 PM 3/14/2006, you wrote:
> >Yeah but look at it this way - how would you know it was offensive if
=20=
> >
> >no one said anything?  I just hope I wasn't being too blunt.
> >
> >Problem is, we can empathise all we want, but we really don't know if
=20=
> >
> >something is offensive to those with disabilities  if we're not =20
> >disabled ourselves.
> >
> >Kat
> >
> >
> >On 14 Mar 2006, at 08:23, lynette smilelaughgiggle wrote:
> >
> > > Wow...sorry I offended so many of you on this list!  I would never =20
> > > with his disability before him, he is NOT a cerebral palsied =20
> > > child..yuck.  You're right, on parents list we state the disablity =20
> > > to share infomation.  The fact that my son has survied a miracle =20
> > > gives other parents who may have a child whom has nearly =20
> > > drowned..hope.
> > >
> > > Hand sugery; I think thumbs and wrist flexor lengthening.  Cody =20
> > > uses his feet for everything, if he could even use one finger he =20
> > > would be elated.  I don't know of anyone who has had the surgery.
> > >
> > > Pump; We went through withdrawals as the cath came out.  Head =20
> > > itching, head aches, increased spasticty.  We still put it back in =20
> > > as his shoulders are dislocating daily from spasticity. I would go =20
> > > to the guy in Colorado, it is not an easy surgery.
> > >
> > > Sorry I offended anyone....
> > >
> > > Lynette, Cody's mom
> > >
> > > _________________________________________________________________
> > > Don=92t just search. Find. Check out the new MSN Search! http://=20
> > > search.msn.click-url.com/go/onm00200636ave/direct/01/