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Date: | Tue, 11 Jul 2006 23:23:43 -0400 |
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<<Disclaimer: Verify this information before applying it to your situation.>>
Thank you to everyone for all the good advice and leads.
Our daughter is nearing the end of the Xifaxan prescription and the doctor
is
going to taper her off to 2 pills a day for a week then quit. It did get
rid of the
mucus, but here is the big surprise about the bleeding.
She has had bleeding gums for some time that were getting worse, and
some blue/purple bruise looking things under her toenail where she had
a surgery which would not go away. She bruised when the nurse took her
blood for tests even though her clotting time and prothrombin were normal
and she would scab well.
I got to thinking about all of the deficiency problems she has had, and
did a google search on bloody diarrhea. One of the first hits that came up
was a university medical website that talked about scurvy. As I thought
back
on her diet, she has never tolerated citrus or tomato well, and stopped
eating
raw fruit some months ago because it did not agree with her. The only fruit
she was getting was cooked and heat destroys vitamin C. Because of her corn
and soy sensitivities we had trouble finding a vitamin C supplement. I also
learned that 2 of the vitamins in the B complex can cause watery diarrhea
if you are severely deficient, and one of them (B3 or B5, I forget which)
can
cause bleeding ulcerations in the GI tract.
So....
She has always done well on Solgar vitamins (mostly soy and corn free) so
we got her the BioAscorbate Complex 500mg caps and she has been taking
4 of them a day (2000mg). I dump it into a veggie cap in case there is any
soy on the gelatin cap. She is also taking Solgar's B100 complex which
comes
in a veggie cap. She is still taking her D1000 and occasional Vitamin E
(yasoohealth.com from rice bran oil). I have no financial interest in these
companies and am only a happy customer.
The website said if you have Scurvy and take a clinical dose of Vitamin C
every
day (over 1200-1500mg), in a week the bleeding should cease. Well sure
enough,
it is a week and the bleeding is almost gone and she is starting to feel
better.
She is also taking the glutamine cap 500mg 4x a day as one of our listmates
suggested, but we have not found a probiotic she tolerates yet.
Another triumph for nutrition. I pass this on in case there is someone else
out there
with intestinal bleeding who can't seem to get a handle on it. This makes
me wonder
how much of ulcerative colitis and/or crohn's bleeding is really a
nutritional
deficiency.
The doctor and I talked today and she will still be scoped but he is willing
to wait until
she is a little stronger to go through it. We are looking for a probiotic
to take once she
is tapering off the antibiotic.
I hope our story helps someone.
Paula in Pa.
Visit the Celiac Web Page at Http://www.enabling.org/ia/celiac/index.html
Archives are at: Http://Listserv.icors.org/SCRIPTS/WA-ICORS.EXE?LIST=CELIAC
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