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My Dearly Beloved Listmates,
Oh dear, Val's on her soap box again. Delete now if you're not in the mood!
Here goes....
Some of you folks may have gotten well from what your wonderful doctors have
done for you, but if you're like me, you've often been disappointed by
medical doctors.* I was not diagnosed by a doctor. I was self diagnosed
after discussing my symptoms w/ other sick people on a fibromyalgia support
list on the internet & observing my responses to various dietary
manipulations. [My tests for celiac disease came out negative.] The
doctors had misdiagnosed me for over 10 years prior to this. And, after my
self diagnosis, even though I went to many doctors for help with the many
complications that were keeping me ill, what I found myself doing was
spending my time & money explaining to the doctors what had or hadn't helped
me. They should have been paying ME for the information I shared!
I was thinking this through the other night & it dawned on me that for at
least 10 years, I have not received a single solitary treatment,
intervention, prescription, suggestion, hint, etc. from a single visit to a
medical doctor that has done a single thing to directly improve my health!
[Well, one treatment from a holistic MD was very helpful, but I won't go
into that now. See below.*] Yet, I've recovered from a horrid death spiral
that I seemed trapped in for years. So where did my help come from? YOU
GUYS! Many thanks for this list & it's sponsors.
I think the internet is what has made it possible for many people like me to
get well. At the time of my self diagnosis 7 years ago, I wouldn't have
found the information I needed to get well at a public library or book
store. In fact, when I first discovered that I must be a celiac, I went to
my local libray & asked for books on celiac disease. The librarian searched
the whole Tacoma Public Library system & couldn't find a single book. An
attendant overheard her & suggested she search for "gluten." She came up
with Bette Haggman's cook books. I was greatful for Bette & her cook books,
but what I was looking for was REAL medical information about this disease
and how to overcome it's many complications. The GF diet alone wasn't enough
for my full recovery. Even after going GF, I was still very ill. No doctor
had been able to supply me with anything that helped. It was other patients
on THIS LIST as well as various books, and both non profit and commercial
websites that supplied me with the information I needed to recover. [Just
because it's commercial doesn't mean it can't be trusted.] But, even the
many helpful books I've purchased & read were suggested by you, my fellow
list mates. God bless you all!
Thankfully there's now a lot more on the library & book store shelves to
help, but only 7 years ago, this disease was still largely unheard of except
in little discussion groups on the internet.
Whoever controls the dissimination of information controls the world! [A
far-fetched humble opinion statement that, of course, can't be proven.
LOL!] Right now, it's the pharmaceutical & the giant food processing
industries that control most of the information that comes to the public
through many medical doctors* and major media: TV, magazines, newspapers,
radio, much of the internet, etc. But the free exchange of information
between the patients over the internet is still free. And to me this
exchange is more valuable than all other sources combined.
Valerie in Tacoma
* To be fair I should explain:
(1) I am NOT anti doctor. Don't misunderstand me, we need medical doctors,
even if many are misinformed about the finer details of our crazy disease.
I'm not totally nuts! There are many, many instances when people NEED to
see a medical doctor. And I'm a strong believer in regular medical care &
check ups, etc.
(2) one helpful intervention from a naturopathic physician -- food allergy
testing & the recommendation of HCl + pepsin -- but these interventions were
first recommended to me from fellow list mates.
(3) another helpful intervention that a holistic MD prescribed is natural
hormone replacement, sometimes called bio-identical hormones (triple
estrogen & progesterone). But I sought out this MD for this prescription
after reading about it in a book that was recommended by a fellow celiac
listmate! So there! HAH!
*Support summarization of posts, reply to the SENDER not the CELIAC List*
Archives are at: Http://Listserv.icors.org/SCRIPTS/WA-ICORS.EXE?LIST=CELIAC
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